In exactly a month

Jeremiah will be ONE!
How time flies!

Everyone's been asking me to put a wish list so they won't end up buying stuff that would seem useless to us. Thank you Lord that all your wonderful angels on earth wanna contribute to the progress of Jeremiah in some way or another.

But right now, really, i can think of nothing but prayers prayers and more prayers. So those of you who have been praying, keep praying. And those of you who don't pray, maybe can start now. NO... not kidding... start now :P of coz if u don't mind, we'll be most glad :)

Actually, God has been granting so many things to us already even before i put up the list. I had wanted to get my hands on lotsa Glenn Doman stuff which God has sent many to us in His own ways. Thanks Belinda for the Glenn Doman stuff and making most of the stuff gifts and so affordable to us.

Will put a wish list up soon. I try. I promise :)

till then, keep Jeremiah in your prayers.

Healing Masses

I am getting so addicted to these healing masses and I think it's a good addiction ;)It just somehow rejuvenates me and recharges me so wonderfully.
Plus you should see how Jere raises his hands in Praise and Worship and how he tries to sing :D
I remember my helper Ros asked me if she wasn't sick should she go and receive the healing and this was what i told her. Well, you don't need to be sick or have someone sick to attend such a service.In my opinion, everyone needs healing in some form or another. Today she's ever so ready to go to the healing masses. She says she always return home feeling so light so charged.
well, the next one will be

16th May 2007
3rd Sat Mass with Healing Service
Church of St Michael
Fr Michael Arro
Rosary session 6.45pm
Praise & Worship 7.30pm
Mass with healing session 8.00pm

and if you are afraid of being alone, just gimme a shout :)

June's Medical Calendar

Jun 06 - 1155 @ KKH Specialist Clinic P Orthopaedic Dr Arjandas review. Paed Surg dept referred us as Dr Y thought Jere's toes were clawed and she kinda freaked out when she saw how Jere had bitten his toes without feeling it.

Jun 08 - 1330 to see therapist at Rehab for a new fitting of the DENNIS BROWN SHOES. Yikes! i'm not exactly looking forward to buying that expensive shoes and letting Jere wearing them again. Jere had been free from them since he outgrew them. Yes! expensive! it cost $155 per pair for the small size ones and the prices goes up with the size! *faint*

Jun 16 - 0830 Physiotherapy Session with Satyaki @ kkh.

Jun 21 - 1150 Specialist Clinic P with Dr J W

Please pray for Jere's hips down to be strengthened and his legs to be straightened and strengthened. Also Jeremiah's bladder walls to normalise and protection of his kidneys to be good and growing well. Amen.

Bitter or Better?

I was talking to dad this morning. Called him to ask him how was his medical check up. Realised he was a little depressed as he said the doctors told him not too good news like his urine colour is no good=infection and he may need another op was the urologist's opinion but the surgeon that has operated on him, how many times? i lost count advises no unless it is a life or death situation.

So i shared with dad.

Frankly, the doctors that see Jere also hardly ever had anything good to say especially the paed surgeon or is she the urologist? If she ever had anything good to say, she'll put it in a really dark way.... like "YOU ARE VERY LUCKY HIS KIDNEYS ARE STILL INTACT!" so i tell myself take it which way positively and thank the Lord Jere's kidneys are intact and be HAPPY and praise HIM! or be bitter about how the dr put it and brood about it thinking why should they not be intact??? of coz i choose the former and keep trusting in Him. A friend asked "can the drs be more positive & encouraging??" jokingly i replied ... "no lor... these doctors all come from ONE KINDA SCHOOL.COLD MEDICAL SCHOOL." akin to the surgical instruments waiting in the cold operating theatre...DEVOID OF FEELINGS... just there to CUT... ok jokes aside... like in every trade, there's the good and the not too good... well, who am i to judge? I've met with GREAT WONDERFUL FEELING DOCTORS that i must say and one of those that i truly respect is the one that operated on Jere's first day of life and saved Jere's life. ok let's put it this way these doctors don't mean to cut... whether it's via their operating tools or the words from their mouth. Well, didn't all these doctors all started with a passion? A burning desire to save and help mankind? No? I'm sure they did. i guess more like it they've seen so much that they try not to have any emotional ties to any patient otherwise when something happens, it will upset them big time too. I'm sure they have feelings too. I'm sure they hurt as well when anything untoward happens to any of their patients. Though sometimes for my urologist... i don't know... i seem to think that maybe she's seen too many patients that she does not realise how much her words can impact people or she's just immuned to the terms? okok.. whatever... I thank God that He is always with me so i am not so much afraid, so to speak for I know He goes before me always and all I've to do is just to trust HIM and follow Him. Yeah... it's ok
all that's important is i know

My Lord loves me
and oh.. the wonders I see.
The rainbow shines in my window
My Lord loves me

and yes, my Lord loves me :) and Jere and you daddy.

This post is to remind myself who makes the decisions for little Jere and to you daddy that we just gotta trust in the Lord for He loves us and has plans for us. Plans to prosper. Not to destroy. Many a times, i would think we try to outsmart God don't we? We try to intervene in His plans. I think sometimes with all these modern technology and medicine, sometimes, well sometimes, i am not saying the modern technology and medicines did not save lives and of coz we gotta give it credit for the many lives saved but it sure took lotsa lives too especially with all the abortions that take place all the times. Did we even give these foetuses a chance?

Well, of coz modern technology has saved little Jere's life too right from the start and I thank God for it for i understood from the doctors that in the 70's babies born of this defect are just left to catch meningitis and die.

God bless all the souls of these babies that are born and return to the Lord due to some defect and of those aborted and take them all to heaven. AMEN.

Blessed Sunday

Two big celebrations in line today.
1. Jit and San's wedding
2. Eileen's Jeremy 1st birthday which reminds me to start working on my dear Jeremiah's birthday preparation.

It's a blessed blessed weekend with all the weddings and celebrations

We brought the whole gang to Jit and San's wedding at The Four Seasons. Nat is a big boy now sitting a seat by himself and enjoying all the food. He's been to so many weddings that i've lost count. All of Tim's friends are married now. On my side, there's still some....Jere was so attracted to Jeremy, Tim's friend, Cindy's hubby, ethan's daddy. I don't know it's Jeremy or his orange shirt but Jere kept flying to Jeremy to be carried. or maybe Jere knows they share the same name :)and Jeremy and Cindy also have been constantly praying for jere since his birth.

After all the weddings, it's all the baby showers and birthday parties....

It's the second wedding lunch that Jere attended. We dressed him in a little Polo Ralph shirt and jeans handed down from nat's time but he sure looked so so cute that Ros called him "MY LITTLE SIR". The first wedding that Jere attended was of coz his fairly oddparents (oops! i mean fairy godparents.... occupational hazard la... there's this programme Fairly Oddparents in the channel i work... haha) Karen and Chris where Korkor Nat was the ring bearer :) Karen and Chris, we hardly ever see them coz they are in Aussie but Nat and Jere is always in their hearts, minds and prayers :) We are planning... yes we are planning... but no blueprint in sight :P to go up and bunk in with Karen and Chris before they move back here. This will also depend if the Yee yee (my sis) and Yee Cheong (Bro in Law) will go too... then we will use Tim's mileage from flying to redeem some air tickets, hopefully...hhmmmm do i smell a holiday in sight? Frankly, we are a little burnt out but juz gotta hang in there :) Maybe we should start with the church retreat :)
Anyway, i brought Jere porridge and fed him some during the first dish. After that he was a little restless so i brought him out and Ros put him to his nap. He slept for a whole good two hours and woke when we finished our lunch. How timely :) He woke to stare at the gorgeous bride and say bye to all of Tim's friends.

We then headed home for a quick shower and fed Jere his dinner and antibiotics before we headed for Jeremy's 1st birthday party at one of the ECs at Yishun. Thank goodness it was nearby but anyhow Nat was so tired that he slept on the way there. Sure no joke when you got kids and adults programme all lined up for the day. Tim was kinda grumpy as he was tired. The kids enjoyed the birthday party... esp Nat of coz as he is already at that age where he can really appreciate blowing of candles, balloons and friends. Jere on the other hand kept screaming for the fried rice that i was having when i let him have a taste of some. Jere knows Godma now and always want Godma to carry. Nat went home with 4 BIG balloons that Morgan, Jeremy's daddy gave believing that if he held the balloons all nicely together, he could just fly up to the sky like Mary Poppins and her umbrella.

Thank you Lord for the many blessings on us all.

Our crazy Saturday

Started with morning physiotherapy with S at KKH. Jere was in an ok mood this time. Usually he cries throughout the sessions and this is the 3rd time only we are doing physio at KKH. See how far apart our appointments are. This time he was trying to pull the hair off the arms of the physiotherapist :P He's an Indian and quite hairy. Thank goodness he was really patient and nice :P

After that, the boys went to kopitiam to have a bite while i made a run to the step down childrens unit to visit little Zoe who's coming 6 months and had a heart surgery last week. She was looking good. Praise God. I carried her and fed her her milk. She's such an angel.

Then we rushed to the 11am novena. After which Tim dropped me at Hyatt to attend Avril's wedding while he brought the boys home for their lunch and a short rest before heading for healing mass at Immaculate Heart of Mary (IHM) at 3pm.

I rushed down to IHM to meet them for the mass. After that there was a reception and Jere enjoyed the band playing for the elderly who attended the healing mass. Jere was happy clapping his hands to the music and the aunties all passed Jere all around.

While i was at the tea reception following the healing mass, thoughts came back to me of being there a year ago when i was pregnant with Jere. Then i thought.... it could have been worst.... and I thank God for blessing Jere and keeping Jere protected.

People were wondering why Jere was wearing a name tag as only those were to be annointed had name tags. Most of them were the elderly and Jere was just a little baby. I had to explain to some but i guess that's how God's name is to be praised :)

Basically, we were there coz the aunties at IHM visited Dad to give him holy communion weekly. The aunties then gotta know Jere and his condition and thus asked us to bring him along to be annointed.

Towards the end when everyone was leaving, i was talking to one of the aunties when we saw someone pushing a really old lady towards us. I thought the lady was coming to the aunty i was speaking to but the lady was actually pushed up to come and hold jere and kiss jere. how sweet yeah? She was so frail... she could not even push her own wheelchair. someone else wheeled her over. she came over and went, "BABY...." No wonder my dad always says... you can be a billionaire but you can't buy a sweet little smile from a little child :) it's priceless. Jere smiled at the lady and she was sure very happy :) before she left.

Jere is such a blessed child. Thank you Lord for all your blessings.
The familiar words of the hymn just comes to mind....

Count your blessings, name them one by one,
Count your blessings, see what God hath done!
Count your many blessings, name them one by one,
And it will surprise you what the Lord hath done.

Results of the ultrasound

Yes, Thank you all for keeping Jeremiah protected with your prayers.
The ultrasound shows the kidneys are growing fine. Praise the Lord! Thank you God!

Dr Y seems to find it hard to believe and keep telling me how lucky we are but i think the fact is we are blessed, protected and kept by our good Lord!

This time, the report also shows thickening of the bladder but there is no numerical values attached to it. The last ultrasound 25th Jan showed the bladder walls measured 4mm in thickness. I asked Dr Y to find out the thickness so at least we will know what trend is it going. Well, it could be 3mm or 2mm or even 1mm right?

Lord, please normalise the bladder walls.

And of coz again, dear Dr Y asks to do Clean Intermittent Catheter (CIC) some i dunno what vasectomy????... some punching of hole to release the urine which all i disagree coz the word itself is intrusive invasive and the dunno what ....tomy is irreversible! why i wanna do such??? and also CIRCUMCISION! ok this i may consider for the hygiene and what not purpose. but i think i may delay coz he's had too much GA for this year....

Let's unite in prayer and pray that the Lord continue to heal Jere and keep and protect Jere. that the nerves affected in the open neural tube defect be restored and his bladder functions bowel movement and his sensation hips down and legs and all will be restored to perfect health! Amen!