It was a hot Saturday afternoon and as usual, after the session. we went to the front and mummy dipped Jere's little right hand in the holy water and guided him with the sign of the cross. After Jere finished with his sign of the cross, his little hands was still quite wet with the holy water.
Jere: Mummy, I still got holy water.
Flinging his little hand at the people around, Jere asked," Mummy can I bless the people?"
Monday, March 9, 2009
Skin Review at National Skin Centre
It was Wednesday, 4th March 2009. Jere had an appointment at the National Skin Centre.
The first thing when I got there was to see whose name was on the door of the consulting room that we were to enter. When I saw it was the Ass. Prof's name that did not give me a good time some 4 months ago, immediately, I took Jere to a side and told Jere," Jere, shall we say a little prayer that our good Lord goes before us and bless the Doctor and guide her with her diagnosis and treatment and also her mind and heart that she would be kind and compassionate and speak blessings.
When it was our turn, we went in. As usual, the prof had a junior dr with her and the prof was at the computer, typing away. However, this time, the prof came forward to see the spots that developed in Jere some 2 days ago. Yes, just when I said Jere was healed and just when we had an appointment, the spots decided to come on. Fortunately, the prof said it was not a biggie and that if we did not use the proper moisturisers, the spots would return. Then, I whipped out the photos of Jere six months ago and pulled up his shirt and pants and told her the eczema was actually completely gone. It was just something that had triggered these batch of spots. Then, Jere had to add on saying, "See Dr, I am healed." Then, the prof said "You're a clever boy." and "Mummy is also doing a good job!"
Ain't prayers amazing???? If you have read what this Prof told me some 4 months ago, you can definitely be sure that the good Lord has gone before us. AMEN! Thank You Lord!
The first thing when I got there was to see whose name was on the door of the consulting room that we were to enter. When I saw it was the Ass. Prof's name that did not give me a good time some 4 months ago, immediately, I took Jere to a side and told Jere," Jere, shall we say a little prayer that our good Lord goes before us and bless the Doctor and guide her with her diagnosis and treatment and also her mind and heart that she would be kind and compassionate and speak blessings.
When it was our turn, we went in. As usual, the prof had a junior dr with her and the prof was at the computer, typing away. However, this time, the prof came forward to see the spots that developed in Jere some 2 days ago. Yes, just when I said Jere was healed and just when we had an appointment, the spots decided to come on. Fortunately, the prof said it was not a biggie and that if we did not use the proper moisturisers, the spots would return. Then, I whipped out the photos of Jere six months ago and pulled up his shirt and pants and told her the eczema was actually completely gone. It was just something that had triggered these batch of spots. Then, Jere had to add on saying, "See Dr, I am healed." Then, the prof said "You're a clever boy." and "Mummy is also doing a good job!"
Ain't prayers amazing???? If you have read what this Prof told me some 4 months ago, you can definitely be sure that the good Lord has gone before us. AMEN! Thank You Lord!
Monday, March 2, 2009
Fill My Cup Lord!
Like the woman at the well I was seeking
For things that could not satisfy;
And then I heard my Savior speaking:
"Draw from my well that never shall run dry".
Fill my cup Lord, I lift it up, Lord!
Come and quench this thirsting of my soul;
Bread of heaven, Feed me till I want no more--
Fill my cup, fill it up and make me whole!
There are millions in this world who are craving
The pleasures earthly things afford;
But none can match the wondrous treasure
That I find in Jesus Christ my Lord.
Fill my cup Lord, I lift it up, Lord!
Come and quench this thirsting of my soul;
Bread of heaven, Feed me till I want no more--
Fill my cup, fill it up and make me whole!
So, my brother, if the things this world gave you
Leave hungers that won't pass away,
My blessed Lord will come and save you,
If you kneel to Him and humbly pray:
Fill my cup Lord, I lift it up, Lord!
Come and quench this thirsting of my soul;
Bread of heaven, Feed me till I want no more--
Fill my cup, fill it up and make me whole!
I am running so so dry...
Fill my Cup, Lord. Fill it up and make me whole!
For things that could not satisfy;
And then I heard my Savior speaking:
"Draw from my well that never shall run dry".
Fill my cup Lord, I lift it up, Lord!
Come and quench this thirsting of my soul;
Bread of heaven, Feed me till I want no more--
Fill my cup, fill it up and make me whole!
There are millions in this world who are craving
The pleasures earthly things afford;
But none can match the wondrous treasure
That I find in Jesus Christ my Lord.
Fill my cup Lord, I lift it up, Lord!
Come and quench this thirsting of my soul;
Bread of heaven, Feed me till I want no more--
Fill my cup, fill it up and make me whole!
So, my brother, if the things this world gave you
Leave hungers that won't pass away,
My blessed Lord will come and save you,
If you kneel to Him and humbly pray:
Fill my cup Lord, I lift it up, Lord!
Come and quench this thirsting of my soul;
Bread of heaven, Feed me till I want no more--
Fill my cup, fill it up and make me whole!
I am running so so dry...
Fill my Cup, Lord. Fill it up and make me whole!
Thursday, February 19, 2009
What song is Jere singing now?
No other name but the name of Jesus
No other name but the name of the Lord;
No other name but the name of Jesus
Is worthy of glory, and worthy of honour,
and worthy of power and all praise.
yes! thanks be to God He sent a wonderful helper, Gina who helps me with the house and the children and teaches Jere all these wonderful praise and worship :)
No other name but the name of the Lord;
No other name but the name of Jesus
Is worthy of glory, and worthy of honour,
and worthy of power and all praise.
yes! thanks be to God He sent a wonderful helper, Gina who helps me with the house and the children and teaches Jere all these wonderful praise and worship :)
BLADDER WASHOUT
AGAIN!
The staff nurse just called to say jere needed another bladder washout coz his wbc was 30 and only then would they arrange his ultrasound and MCU
Does a wbc of 30 really warrant a bladder washout?????
I don't know why... but I just said NO.
Somehow, something in me questions... bladder washout no pressure? with the syringe pumping in the saline and drawing out the saline.
Somehow, I am a little sceptical about the whole management when I hear of this bladder washout thing.
The last I blogged about bladder washouts was some October. Last December, Jere came down with infection again. Jere went into hospital for a routine check which ended up with his urine having a high wbc again. That was a Thursday when we did a urine test. Then we were instructed to go to the hospital on Friday for a bladder washout and stay 3 hours and do another urine test. I felt that it was a little questionable as after a washout, i am sure the urine would be clear. NO? The attending dr insisted. I hung out in the hospital then returned to the children surgery centre again 3 hours later to catheter some urine for a retest. I asked the nurse as she was drawing out the urine whether would it be accurate, she then assured me yes. I then thought alright, maybe the medical professionals know their stuff. Jere had his urine drawn out and we went home. That very afternoon, they called us and said urine test cleared. We were so happy. Then the weekend passed. Monday, the hospital called and said "We sent the Thursday urine for culture and indeed there is an infection so please come and get the necessary medication and do some more bladder washouts. I thought it was so so strange. If they had wanted to treat Jere based on Thursday's urine, why should they bother to make us do another retest on Friday? Money is secondary, it was both stressful for Jere to stay so long in the hospital and also it was really draining for me too. What exactly were they thinking? Do they thiink through the process or they just give whatever orders that spins off their head? When I asked the nurse why had they make Jere do another urine test on Friday if they had wanted to base the treatment on Thursday urine test. The nurse kept quiet.
I really really can't understand the management of this whole thing at all.
Lord, make me a channel of your peace.
I'm tired. Lord, take over.
Make me a channel of your peace,
Where there is hatred, let me bring Your love,
Where there is injury, Your pardon Lord,
And where there's doubt, true faith in You
Oh Master, grant that I may never seek,
So much to be consoled as to console,
To be understood, as to understand,
To be loved, as to love with all my soul
Make me a channel of your peace,
Where there's despair in life let me bring hope,
Where there is darkness, let me bring light,
And where there's sadness, bring Your joy
Oh Master, grant that I may never seek,
So much to be consoled as to console,
To be understood, as to understand,
To be loved, as to love with all my soul
Make me a channel of your peace,
Where there's despair in life let me bring hope,
Where there is darkness, let me bring Your light,
And where there's sadness, bring Your joy
Oh Master, grant that I may never seek,
So much to be consoled as to console,
To be understood, as to understand,
To be loved, as to love with all my soul
Make me a channel of your peace,
For when we give, we will ourselves receive
It is in pardoning that we are pardoned
And in dying that we gain eternal life
And in dying that we gain eternal life
The staff nurse just called to say jere needed another bladder washout coz his wbc was 30 and only then would they arrange his ultrasound and MCU
Does a wbc of 30 really warrant a bladder washout?????
I don't know why... but I just said NO.
Somehow, something in me questions... bladder washout no pressure? with the syringe pumping in the saline and drawing out the saline.
Somehow, I am a little sceptical about the whole management when I hear of this bladder washout thing.
The last I blogged about bladder washouts was some October. Last December, Jere came down with infection again. Jere went into hospital for a routine check which ended up with his urine having a high wbc again. That was a Thursday when we did a urine test. Then we were instructed to go to the hospital on Friday for a bladder washout and stay 3 hours and do another urine test. I felt that it was a little questionable as after a washout, i am sure the urine would be clear. NO? The attending dr insisted. I hung out in the hospital then returned to the children surgery centre again 3 hours later to catheter some urine for a retest. I asked the nurse as she was drawing out the urine whether would it be accurate, she then assured me yes. I then thought alright, maybe the medical professionals know their stuff. Jere had his urine drawn out and we went home. That very afternoon, they called us and said urine test cleared. We were so happy. Then the weekend passed. Monday, the hospital called and said "We sent the Thursday urine for culture and indeed there is an infection so please come and get the necessary medication and do some more bladder washouts. I thought it was so so strange. If they had wanted to treat Jere based on Thursday's urine, why should they bother to make us do another retest on Friday? Money is secondary, it was both stressful for Jere to stay so long in the hospital and also it was really draining for me too. What exactly were they thinking? Do they thiink through the process or they just give whatever orders that spins off their head? When I asked the nurse why had they make Jere do another urine test on Friday if they had wanted to base the treatment on Thursday urine test. The nurse kept quiet.
I really really can't understand the management of this whole thing at all.
Lord, make me a channel of your peace.
I'm tired. Lord, take over.
Make me a channel of your peace,
Where there is hatred, let me bring Your love,
Where there is injury, Your pardon Lord,
And where there's doubt, true faith in You
Oh Master, grant that I may never seek,
So much to be consoled as to console,
To be understood, as to understand,
To be loved, as to love with all my soul
Make me a channel of your peace,
Where there's despair in life let me bring hope,
Where there is darkness, let me bring light,
And where there's sadness, bring Your joy
Oh Master, grant that I may never seek,
So much to be consoled as to console,
To be understood, as to understand,
To be loved, as to love with all my soul
Make me a channel of your peace,
Where there's despair in life let me bring hope,
Where there is darkness, let me bring Your light,
And where there's sadness, bring Your joy
Oh Master, grant that I may never seek,
So much to be consoled as to console,
To be understood, as to understand,
To be loved, as to love with all my soul
Make me a channel of your peace,
For when we give, we will ourselves receive
It is in pardoning that we are pardoned
And in dying that we gain eternal life
And in dying that we gain eternal life
Wednesday, February 18, 2009
The Clean Intermittent Catheterisation (CIC) Training II
Today is Wednesday 18th February.
I thought long and hard.
Jere had physical program at Clouds of Praise today.
Should I go to the hospital for the CIC training?
I was really quite at a loss. To go or not to go?
Me to the helper: (sigh) Gina dear, should we go?
Gina: I don't know m'am, it's up to you.
Me: ok let's just get ready and see how.
We got ourselves ready and got out of the house.
At the train station, I was still quite reluctant to go.
Me: How? Gina, How?
I think only God has the answer for me. Yes, I know that and I haven't been reading His word enough that's why I am so lost.
Jeremiah, on the other hand was very very focused. Along the way, as we passed neighbours, not one but two, he had the same answer to the question. Everytime a neighbour asked, "Where are you going?",
he would very consistently reply," 我要常在基" ( I want to always remain in the Lord)which is his way of calling the Clouds of Praise coz the first thing he learnt there was "我要常在基督内喜乐因这喜乐是我的力量" (I want to always remain in the joy of the Lord for the joy of the Lord is my strength)
However, Jeremiah was a really good boy. When I asked him, can we go to the hospital first to take out your ssh sshh (urine)?
Jere replied, " Yes, coz i am a good boy. Not naughty boy."
We reached the hospital, this time, another staff nurse assisted us. She then asked Gina to try her hand at it. Gina seemed a little nervous but tried to do it. Jere was very cooperative. Gina washed her hands, prepared the cotton swaps with chlorehexidine (sp?) then our dear nurse said she wanted to send the urine for test. I found it rather strange that if she had wanted the urine for test, shouldn't the professional do the job in case we may not do it right and cause any contamination or do anything wrong? The staff nurse said never mind and my helper, Gina could do it and the urine collected can be sent for test. Gina carefully inserted the catheter. There was very little urine collected. Probably just a teaspoon. Then, when we thought it was done, and the catheter should be removed from the penis, the staff nurse suddenly took out her pen and wrote on the paper towel that Jere was lying on, telling us that if we started the CIC, we had to keep a chart and she started drawing a chart on the paper towel with me trying to keep Jere's hands off the catheter as he was trying to pull off the thing stuck in his penis. Finally, I couldn't take it anymore, I told the staff nurse,
"Can we not remove the catheter first before you start explaining whatever chart we have to keep and draw it on proper paper so we can keep and have a better understanding?"
Then it suddenly dawned upon the nurse that the catheter was still in the penis. *sigh* Did she not realise that there is something stuck to someone's private? I wonder.
Then, we were told to go to the counter to pay.The cost was $19.50. I enquired why so and the staff nurse then said $12.50 for the CIC and $7 for the urine test. I was a little baffled as I thought I was told that when we did it we won't be charged. I had to ask them to clarify and the staff nurse said,
"You used our facilities and supplies."
I really wasn't warned how much it was all gonna cost us when they were advising us to do the daily CIC thing. It's not so much of the cost of $12.50 but I really think that maybe I would feel more at peace not doing this catheter thing and giving the money as offering. Really, we should have been advised what were the costs involved especially so when I had said I liked the professionals i.e. the nurses to do the demo for 1 week and I would do it for another week before I start to do it myself at home. While we can still afford, that's fine but they said they will hold our hand till we are confident enough. Seriously, that did not sound like there was any costs involved or maybe I'm just too naive. Maybe they should have re phrase it to "We will hold your hand till you are confident enough but we will also charge accordingly." The dr even asked what was holding us back and if we needed a social worker to see us at a point when we were refusing to do the daily CIC.
Maybe a CIC support group should be formed and some nurse volunteer would help to do demo for free was my idea of holding hand. Instructing and advising the parents or caregivers along the way in terms of buying whatever supplies and as for facilities, how much of the water are we using to wash our hands? or how much more lights are we using or bed? This is what I call holding hands. This is a government hospital. A public hospital so to speak.
These people are not in the situation. They have healthy children. Do they really care about how much we are paying in our whole management of our special little one? Do they care about the costs that we incur all the time? Come on, where is the compassion here? I am sure with each CIC demo done by the nurses would not mean commission to the nurse and it does not mean that the bed or lights are not gonna be there if we were not there. Really, I just can't understand this whole thing. What's more we have been and still are a patient there and this is a public hospital. What send social worker to speak to us? You need not give us money by the hundreds or thousands but just a simple act of compassion, is it that difficult? Must everything be so bureaucratic?
Pray our good Lord leads and guides Jere's attending drs and nurses. Pray that our Lord lead me to make the right decisions for Jere. AMEN!
I thought long and hard.
Jere had physical program at Clouds of Praise today.
Should I go to the hospital for the CIC training?
I was really quite at a loss. To go or not to go?
Me to the helper: (sigh) Gina dear, should we go?
Gina: I don't know m'am, it's up to you.
Me: ok let's just get ready and see how.
We got ourselves ready and got out of the house.
At the train station, I was still quite reluctant to go.
Me: How? Gina, How?
I think only God has the answer for me. Yes, I know that and I haven't been reading His word enough that's why I am so lost.
Jeremiah, on the other hand was very very focused. Along the way, as we passed neighbours, not one but two, he had the same answer to the question. Everytime a neighbour asked, "Where are you going?",
he would very consistently reply," 我要常在基" ( I want to always remain in the Lord)which is his way of calling the Clouds of Praise coz the first thing he learnt there was "我要常在基督内喜乐因这喜乐是我的力量" (I want to always remain in the joy of the Lord for the joy of the Lord is my strength)
However, Jeremiah was a really good boy. When I asked him, can we go to the hospital first to take out your ssh sshh (urine)?
Jere replied, " Yes, coz i am a good boy. Not naughty boy."
We reached the hospital, this time, another staff nurse assisted us. She then asked Gina to try her hand at it. Gina seemed a little nervous but tried to do it. Jere was very cooperative. Gina washed her hands, prepared the cotton swaps with chlorehexidine (sp?) then our dear nurse said she wanted to send the urine for test. I found it rather strange that if she had wanted the urine for test, shouldn't the professional do the job in case we may not do it right and cause any contamination or do anything wrong? The staff nurse said never mind and my helper, Gina could do it and the urine collected can be sent for test. Gina carefully inserted the catheter. There was very little urine collected. Probably just a teaspoon. Then, when we thought it was done, and the catheter should be removed from the penis, the staff nurse suddenly took out her pen and wrote on the paper towel that Jere was lying on, telling us that if we started the CIC, we had to keep a chart and she started drawing a chart on the paper towel with me trying to keep Jere's hands off the catheter as he was trying to pull off the thing stuck in his penis. Finally, I couldn't take it anymore, I told the staff nurse,
"Can we not remove the catheter first before you start explaining whatever chart we have to keep and draw it on proper paper so we can keep and have a better understanding?"
Then it suddenly dawned upon the nurse that the catheter was still in the penis. *sigh* Did she not realise that there is something stuck to someone's private? I wonder.
Then, we were told to go to the counter to pay.The cost was $19.50. I enquired why so and the staff nurse then said $12.50 for the CIC and $7 for the urine test. I was a little baffled as I thought I was told that when we did it we won't be charged. I had to ask them to clarify and the staff nurse said,
"You used our facilities and supplies."
I really wasn't warned how much it was all gonna cost us when they were advising us to do the daily CIC thing. It's not so much of the cost of $12.50 but I really think that maybe I would feel more at peace not doing this catheter thing and giving the money as offering. Really, we should have been advised what were the costs involved especially so when I had said I liked the professionals i.e. the nurses to do the demo for 1 week and I would do it for another week before I start to do it myself at home. While we can still afford, that's fine but they said they will hold our hand till we are confident enough. Seriously, that did not sound like there was any costs involved or maybe I'm just too naive. Maybe they should have re phrase it to "We will hold your hand till you are confident enough but we will also charge accordingly." The dr even asked what was holding us back and if we needed a social worker to see us at a point when we were refusing to do the daily CIC.
Maybe a CIC support group should be formed and some nurse volunteer would help to do demo for free was my idea of holding hand. Instructing and advising the parents or caregivers along the way in terms of buying whatever supplies and as for facilities, how much of the water are we using to wash our hands? or how much more lights are we using or bed? This is what I call holding hands. This is a government hospital. A public hospital so to speak.
These people are not in the situation. They have healthy children. Do they really care about how much we are paying in our whole management of our special little one? Do they care about the costs that we incur all the time? Come on, where is the compassion here? I am sure with each CIC demo done by the nurses would not mean commission to the nurse and it does not mean that the bed or lights are not gonna be there if we were not there. Really, I just can't understand this whole thing. What's more we have been and still are a patient there and this is a public hospital. What send social worker to speak to us? You need not give us money by the hundreds or thousands but just a simple act of compassion, is it that difficult? Must everything be so bureaucratic?
Pray our good Lord leads and guides Jere's attending drs and nurses. Pray that our Lord lead me to make the right decisions for Jere. AMEN!
Monday, February 16, 2009
Healed!
Jeremiah's healed of his eczema! PRAISE GOD! THANK YOU LORD!
I will try to get the pics up of 6 months ago and now.
Lotsa people who've seen his skin at its worst was pleasantly surprised to see his skin nice and normal.
A friend even said "He does not look like he's got eczema!"
and Jere's eczema was not just serious, it was chronic back then.
JEREMIAH IS HEALED OF HIS ECZEMA! PRAISE GOD!感谢祖!
I am gonna give testimony this Saturday at Church of St Michael's healing mass. Got all the pictures ready to pass around, those of 6 months ago and all can see how his skin is healed and restored! AMEN! THANK YOU LORD! and guess what? it's the hubby that said... "YOU SHOULD GIVE TESTIMONY ABOUT THIS!" Jere's skin 6 months ago looks like it's been burnt. No kidding! Come right down to the healing mass and see and hear for yourself!
Thank You Lord
I come before you today
And there's just one thing that I want to say
Thank you lord
Thank you lord
For all you've given to me
For all the blessings that I cannot see
Thank you lord
Thank you lord
**With a grateful heart
With a song of praise
With an outstretch arm
I will bless your name
Thank you lord
I just wanna thank you lord
Thank you lord
I just wanna thank you lord
Thank you lord
For all you've done in my life
You took my darkness and gave me your light
Thank you lord
Thank you lord
You took my sin and my shame
You took my sickness and healed all my pain
Thank you lord
Thank you lord
Yes, Jere sings this song out loud with his hands outstretched and his eyes closed!
I will try to get the pics up of 6 months ago and now.
Lotsa people who've seen his skin at its worst was pleasantly surprised to see his skin nice and normal.
A friend even said "He does not look like he's got eczema!"
and Jere's eczema was not just serious, it was chronic back then.
JEREMIAH IS HEALED OF HIS ECZEMA! PRAISE GOD!感谢祖!
I am gonna give testimony this Saturday at Church of St Michael's healing mass. Got all the pictures ready to pass around, those of 6 months ago and all can see how his skin is healed and restored! AMEN! THANK YOU LORD! and guess what? it's the hubby that said... "YOU SHOULD GIVE TESTIMONY ABOUT THIS!" Jere's skin 6 months ago looks like it's been burnt. No kidding! Come right down to the healing mass and see and hear for yourself!
Thank You Lord
I come before you today
And there's just one thing that I want to say
Thank you lord
Thank you lord
For all you've given to me
For all the blessings that I cannot see
Thank you lord
Thank you lord
**With a grateful heart
With a song of praise
With an outstretch arm
I will bless your name
Thank you lord
I just wanna thank you lord
Thank you lord
I just wanna thank you lord
Thank you lord
For all you've done in my life
You took my darkness and gave me your light
Thank you lord
Thank you lord
You took my sin and my shame
You took my sickness and healed all my pain
Thank you lord
Thank you lord
Yes, Jere sings this song out loud with his hands outstretched and his eyes closed!
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