Thursday, December 27, 2007

4th Neurologist Assessment - Dec 2007 - How did it go?

In short, it's ok. will elaborate later.

but the Dr sure always says things to bring me down the rest of the day.

Wednesday, December 26, 2007

God's prompting!

and yes His prompting is so so strong that I must post here and remind myself....
I got that prompting at the last healing mass and now as I am seated in front of the PC too....telling me even to print out a part of this blog which shares the good news to be put on transparency on the overhead projector so that people could read if we are not clear enough as we speak.

At the last healing mass in St Michael's 15th Dec, when testimonies were being called for, I was telling myself as I was seated at my bench that I wanna go out and proclaim His name and give all glory to Him the next healing mass! I told the Lord that in 2 days' time, Jeremiah will have a test, the Micturating Cistogram or MCU in short to check the functionality of his bladder and if there was any reflux to the kidneys. I asked the Lord to heal Jeremiah, to protect Jeremiah kidneys, to heal his neurogenic bladder, restore the nerves that had been affected in the open neural tube defect. I then told the Lord, Lord, I wanna be out there in the next healing mass sharing in the wonderful love and blessings that He has bestowed upon Jeremiah and us his family.

Jeremiah was born with Spina Bifida, in other words, an open neural tube defect and this affects him hips down, of which one of the problems are a neurogenic bladder which is Drs say he can't empty his bladder due to some nerve that got damaged or never ever developed. Thus, we have to go for such tests regularly to assess progress to ensure the kidneys aren't affected.

And the next healing mass at St Michael's you shall see us proclaim His name! otherwise knock us hard on our heads! Maybe I should get Tim to read this or to do the testimony as I always get too emotional. TIM DEAR! ARE YOU READING????

The next healing mass
19th January 2007
3rd Sat Mass with Healing Service
Church of St Michael
Rosary session 6.45pm
Praise & Worship 7.30pm
Mass with healing session 8.00pm

See u there! God bless!

Neurologist Assessment - Dec 2007

Gosh! How time flies!

It's been 3 months since little Jerry was last assessed by the neurologist at KKH and he's due for his appointment again on the 27th Dec at 1150am clinic P KKH.

Please pray that the neurologist is guided by God in her assessment and that Jerry grows up with healthy wonderful development! AMEN!

Tuesday, December 25, 2007

MERRY BLESSED CHRISTMAS!!!!

to one and all!

and let's celebrate keeping in mind it's Jesus birthday!
Thank you Father in heaven for sending us your son, Jesus.

Lord at this Christmas time I come to you
I need to talk to you today
I need to thank you that you came to Earth
and that you came in such a special way
You came to save a lost and lonely world
No other reason for your birth
and yet so often we forget you on this day
Lord there's just one thing
I really need to say
I want to give you a special gift
to say I love you by what I do
I want this Christmas to be different from the rest
I want to give myself to you

Here's something very special for the more chinese people... well even for me... who is not so into chinese also appreciate this so I am sure you will all appreciate this.... esp when the kids sing this.... just awesome!
it's all about

THE GIFT

一件礼物

1。有一件礼物,你收到没有,
眼睛看不到,你心会知道,
这一件礼物,心门外等候,
是为了你准备,别人不能收。

副歌:生命有限,时光也会走,
如果你不珍惜,机会难留,
礼物虽然好,如果你不要,
你怎么能够得到,
怎么能得到?

2。亲爱的朋友,你是否想到,
马槽的婴孩,是为你而来,
亲爱的朋友,你是否了解,
最好的礼物是人子主耶稣。

Tuesday, December 18, 2007

Jere's 17 and a half months

today... yeah exactly

and let's look at what our little champ can do!

First, Let's look at his spiritual milestones.

1.The little one joins his hands when you say "Jere, let's say grace" before our meals.

2. At the cue of "In the name of the father,....." he tries to make the sign of the cross. *dot dot dot here dot dot dot there with his little fingers but just dot all the wrong places at the wrong time!* haha

3. When we pray, he ends it with "Amen!"

4. He tries to sing the hymns that you are singing with his own renditions and lifts up his hands in praise and worship.

then he has started to call.... not in any order of preference and some of which he has been calling for the longest time

1. Ma meh (that's me!)
2. Dar Dar (that's his daddy!)
3. Kor Kor
4. Tita (tagalog for aunty that's what he calls our helpers)
5. Grandma
6. Ah Kong
7. Ah Ta (means paternal grandpa in hakka)
8. Ah Nei (means paternal grandma in hakka)
9. Papa (that's what he calls my dear Brother-in-law Jason actually. Jerry just decides to call him Papa!)
10. Mama (that what he calls my dear sis... his variation of Yee Ma)
11. Porpor (all the aunties downstairs at the void deck)
12. Uncle
13. Auntie
14. Meimei
15. Didi
16. Baby

Jeremiah and drawers

I heard the drawer opening and closing opening and closing in the room then i went towards the room and as I caught sight of the room from the door, there the little rascal, yes, our dear little Jeremiah was opening and closing the drawer of the bedside table.

I put my arms on my hips and in an almost scolding tone went "Who's playing with the drawers?"

Our dear friend quickly back off from the drawers and shook his head saying "NO..... NO....." *certainly not me kinda face*

It was such a sight.... my seventeen month old baby is growing up to be a BIG BOY :)

not that I'm happy my baby is playing with drawers.... but my baby is going the way the usual baby does :) inquisitive... cause and effect.... it opens? it close! haha

How did the MCU go?

We reached KKH at about 1615hr, quickly registered and was sent along to wait outside the procedure room. A nurse came out and told me to change Jere into the gown. I changed him and he was still quite unsuspecting of what was going on. In his gown, he continued to play outside the waiting area.

Then someone from the room came out and called for Jeremiah. I went into the room with him. The doctor then briefly explained to me what the procedure about.... how they were gonna insert a catheter in and put in some contrast solution and then see how the bladder reacts and if there was any reflux. Then they told me I had to leave the room while they inserted the catheter and come in only when they were done.

I left the room and Jere was almost gonna cry as he kinda suspect now something was quite amiss. I whispered into his ear that Jesus loves Jeremiah and He will heal Jeremiah and Jere responded with an "AMEN" which kinda amazed the people in the room too.

Waiting outside the room, I could hear Jere's loud wailing. Poor baby. However, each time i heard his cries, I told myself. He feels. He senses the pain otherwise why would he wail?

I prayed for strength and I thought of Mother Mary and Jesus. Mother Mary is just so so amazing and faithful. She submitted to the will of God seeing her only son Jesus being tortured, scourged and crucified when He had done no wrong. Her heart must have bled so much. What's this little cross that Jeremiah's carrying? What's this little pain I feel?

Then the door opened and the medical staff asked me to go in.

There I saw little Jerry strapped down to the "space craft". I quickly held his hands and assured him mummy is there with him. His cries were uncontrollable. Nothing seemed to comfort him. It was certainly scary to be strapped to that darn thing with something else coming close down almost on your face and being strapped totally with no defence at all wondering the thing on top would it ever slam down on your face is definitely what I felt for little Jerry. It's almost like Indiana Jones and the temple of doom. Poor baby.

I talked and talked to little Jerry with tears streaming down my own face singing all the hymns familiar to him. From Jesus saves to Jesus loves you to Song of a Young Prophet to It's a great day to praise the Lord to What a friend we have in Jesus.... Slowly but surely God's peace transcended all understanding. The peace guarded our hearts and minds.

My peace I give unto you
It's a peace that the world cannot give
It's a peace that the world cannot understand
Peace to know, peace to live,
My peace I give unto you.

My tears dried up and I just kept singing....

What seemed almost like eternity soon ended and the Dr said "ok, you can carry him now"

I quickly got him out of "the craft". Jerry cried till his whole head was wet and his face was full of his tears and mucous from the nose. As they invited me out, I couldn't help but turn around and asked the Dr how did the thing look.

Normally, the Dr or radiologist won't want to comment and would say "your specialist would explain to you"
But the Dr said, "Good. No reflux! He can empty his bladder a little on his own. Looks like he will recover his condition in time but till then you gotta keep monitoring and treatment."
I couldn't help but say out loud "Thank you Lord! Praise the Lord!". I was just a little short of shouting it out.

Jerry was so so sweet. When I told him to be nice and say bye bye before leaving, he took out the pacifier that he was sucking for comfort and muttered his "bubbye" waving at all in the room.

I know Jeremiah was given to me for a purpose. God will raise up and set free is the meaning of Jeremiah and God will definitely do that for my little Jerry. Jeremiah will be exalted of the Lord. Jeremiah is my little brave warrior and the battle is the Lord's. Our God will reign VICTORIOUS!

Yes Jeremiah will be healed. He will recover his condition in time. Jeremiah will be restored and will be raised up and be set free! In Jesus name we pray. AMEN AMEN AMEN! ALLELUIA! ALLELUIA! ALLELUIA!

and with this I shall end this post with a song of thanksgiving.

Thank You Lord!
I come before you today
And there's just one thing that I want to say
Thank you lord
Thank you lord
For all you've given to me
For all the blessings that I cannot see
Thank you lord
Thank you lord

**With a grateful heart
With a song of praise
With an outstretch arm
I will bless your name
Thank you lord
I just wanna thank you lord
Thank you lord
I just wanna thank you lord
Thank you lord

For all you've done in my life
You took my darkness and gave me your light
Thank you lord
Thank you lord
You took my sin and my shame
You took my sickness and healed all my pain
Thank you lord
Thank you lord

Friday, December 14, 2007

Healing Mass

Tomorrow at Church of St Michael's

Healing mass at
15th December 2007
3rd Sat Mass with Healing Service
Church of St Michael
Rosary session 6.45pm
Praise & Worship 7.30pm
Mass with healing session 8.00pm

See u there! God bless!

Thursday, December 13, 2007

Micturating Cystogram (MCU in short)

Scheduled on the 17th December 2007 1600hr at KKH Diagnostic Imaging Department

We missed the last one in 14th Aug coz Jere was having a flu then.

Just in case you are wondering again what's MCU, it's all about passing a fine tube through the urethra (the hole thru which urine is passed) with a special solution running slowly thru the fine tube into the bladder. X rays films are taken by the radiologist during and after the procedure. This is to assess the progress as Jere was diagnosed with neurogenic bladder at birth.

I know it's not gonna be as easy as it sounds as Jere will be strapped down in this weird "space craft" looking thing on top of inserting a tube through "there" and this would definitly call up any fear in anyone. Who likes to be restrained and it certainly feels claustrophobic to be strapped onto that kinda craft?

Please pray that God be with Jeremiah and take away all the discomfort and fear in him and all the test shows good results. Please also pray for strength in me that I may be able to be strong throughout the procedure. Amen.