Sunday, March 23, 2008

I'm Glad I live in a ....

HOUSE!
Not in a hole like a....
Jere shouted "MOUSE"!

We all cracked up when we heard Jere shouted that "MOUSE!"
I could not believe my own ears as I was in another room when Jere answered "MOUSE!" to my singing and I went, "Who said that? Was it Jere?" and the daddy and the helper proudly and happily echoed "YES!"

All of us kinda got infected by The Donut Repair Club Christian Music.

We started out with 2 vcds, 1 of which I got for Nathaniel when he was about 2 years old. Then, when I told my sister that Nat loved it, she got him another. Soon we kinda forgot about it till Jeremiah came around.

When we put it on the vcd player since jere's arrival and as the song Higher Higher played, Jeremiah would crawl all over the living room round the dining table which made us really glad as he danced for the Lord!

Then, one day, God blessed us with 6 more of such VCDs from an angel called Peck Lee whom I've never even met before! Peck Lee wanted to sell these vcds and I contacted her but later Peck Lee decided to give it to the boys hoping that they would minister to the boys and indeed they have! Praise the Lord!

Now Jere always asks for the Donut Man or another of the Psalty's vcd saying "CHURCH MOUSE CHURCH MOUSE!"

Go get your kids some donut man CDs today! It's amazing and surely wonderful to hear the kids give praise to God! ALLELUIA!

Saturday, March 22, 2008

Easter and New Life

It's gonna be wonderful tonight as we witness the baptism of many in the Easter vigil.

Tim and Nat are new converts baptised some 3 years ago. Oops! I can't even remember the date. Maybe today, later, I'll make an effort to find out the dates of all our baptisms and celebrate as we would celebrate the birthday since this is even better than our birthday!

The only baptism date that I remember is Jeremiah's. We were so afraid then when he was born. Afraid that he would not be able to make it as he stopped breathing on us several times in the Neo Natal Intensive Care Unit(NICU). Jeremiah stayed in there for more than 2 weeks and when he was discharged finally, we quickly booked him the next infant baptism date.

Jeremiah was baptized 1st October 2006, yup, some one and half year ago and yes, apologies for not showing you this pic earlier.



The bib that Jeremiah is wearing reads "Through baptism, I have become a child of God".

Only after Jere's baptism then did I heave a huge sigh of relief as I entrusted all in the hands of the Lord. Jeremiah had NEW life within him from then and if you had been following my blog, you would not have missed how God had walked with us and blessed us.

Thank you Father God for giving us your son to save us! Thank you Father for your gift of life. Thank you Father for blessing us. I pray thee Father to guide us and help us to follow your plans for we know you have wondrous plans for us. AMEN!

So if you are thinking of CHOCOLATES! EGGS! BUNNIES....when the word Easter is mentioned?

It's time to ask yourself, Where's JESUS? Does colored eggs and bunnies and chocolates have anything to do with Jesus? Where did this concept of easter bunnies and eggs originated?

I guess the real meaning of easter has really been buried with time.

Okie, I won't go into the bunnies and hares, springs and what nots that has commercialised the whole matter of Easter.

Let's dig out the truth and honour Our Lord Jesus's victory over death, His resurrection from the dead, and His glorious promises of eternal life for all who believe in Him as it brings us new life.

By His stripes we are all healed!

The Resurrection of Christ brings new life!

AMEN!
ALLELUIA!
PRAISE THE LORD!

Friday, March 21, 2008

Creeping aka Doggy crawl?

Well, actually he first started creeping when we were at Pattaya, Thailand. We were so excited to see him creeping then.


We were so so fascinated! That was 4th November 2007! Praise the Lord! Alleluia! He is doing very much on this now. Whenever he crawls on his tummy, we would tell him "Jere, up and creep!" and he would do just this! Praise the Lord for the strength that Jere is getting! and his accomplishments everyday!

Thursday, March 20, 2008

Our water baby

Somehow, we were always told that water therapy is very good for little Jeremiah and we always took to the pools as often as we could get. How nice if there was one just downstairs! We always went to the one at Yishun or Bishan where they had a wading pool that Jere could do his creeping (in Glenn Doman terms it meant getting on the knees and hands). Here's one of the pictures of Jere at the pool in SAFRA Yishun



This picture is taken 26th Jan 2008. Jeremiah just loves the water! The thermal suit that Jere has on is a blessing from God through Laura :)

5th Neurologist Assessment - 20th March 2008

It's amazing how prayers really work! God is ever so faithful! Just stay close to Him and you can never go wrong in anything you do.

The assessment was good! GREAT! WONDERFUL! In every aspect that we prayed.

I am sure the neurologist was God guided for one. Then the progress report was good!

Okie lemme just recount what happened.

We entered the doctor's room. Dr J was sitting there as usual but this time with 2 young medical students? sitting behind her.

Dr J: Hello Jere!

Me (carrying Jere): Jere, say hello.

Well, usually he does so spontaneously, but this time he was a little wary. He scanned the room and I bet if he was on his feet, he would really take to his heels! After so many medical appointments, Jere seemed to have developed a radar to detect doctors far or near, western or chinese.

Nat who came along, settled himself comfortably opposite the doctor at the table and went "I know you! You are the doctor on the ship!" Nat recognised Dr J for being on the cruise with us when we went on a trip with Club Rainbow last December.

Dr J: Sure I am!

Jere kinda senses it's not that "dangerous" after all since korkor is so comfy.

Me (quickly taking the opportunity): Come on, be nice Jere. Say HELLO.

Jere waved a little wave and manage a little "HAR-LO"

Quickly, I tried to switch his attention.
Pointing to the seat near the doctor, I asked, "Jere, would you like to take a seat?"
Jere nodded and went "SIT"
Me: Jere, can you ask nicely? say MUMMY.... PLEASE..... MAY.... I...... SIT?
Jere followed after me, nodding: MUMMY.... PLEASE..... MAY..... I...... SIT?

Boy! Was the doctor impressed!

Dr J: Wow! Jere, it's only 3 months ago that I last saw you and you are speaking so much now!

By now Kor kor Nat was playing with his box of dinosaurs and car that he brought along. Quickly I asked Korkor to distract Jere before he gets uncomfortable. Nat passed over a dinosaur and Jere went "SAUR.... SAUR".

Dr J: Oh! He can say quite a number of words already huh?

Me (proudly): Yeah!

Dr J (looking at Jere's eczema):His skin looks like it's getting worst yeah...

Me: It's actually getting better! It used to be weepy. At least, now it's dry. I've been using homeopathic medicine on him.

Dr J: You know that you have to look out for latex allergy right?

Me: Yeah

Actually, I think Jere is more allergy to the dirt and dust in the environment coz I noticed his skin got worst when he started crawling and sitting on the floor and eating whatever we were eating. We try to keep our home as clean as possible but how far can we get when we've got a dog at home and we can't possibly just dump her somewhere coz after all, the doggie, Bonnie is our ROM child. Well,we got her when we ROM coz we were not supposed to have kids yet then... haha Registering Of Marriage here in Singapore is not considered officially married till you marry customarily. But I must say the children love her! yes Bonnie. I think the doggie is also a kinda therapy for the kids. I have always believed that kids raised with animals tend to be more compassionate and we could also teach them responsible stewardship. Jere loved Bonnie since he first saw her. He was always trying to reach out for her.



this picture was taken 23rd Dec 2006. Okie let's not drift off the topic.

Now back to the neurology news....

Dr J (whipping out her measuring tape): Jere, can I measure your head?

Jere (sharply): NO! (quickly turning to me) GO! GO! GO! (pointing out of the room)
He always seemed a little sensitive when it came to looking at his lesion or measuring his head.

Dr J, learning from her last appointment with us when I took the measuring tape from her and measured my own head and Nat's before attempting to measure Jere's then tried to measure her own head and then Nat's and tried Jere really quickly and succeeded.

Dr J: Good! It's the same as 3 months ago!

Me: Praise the Lord!

This means the hydrocephalus has been arrested! AMEN!

Me: Jere, Praise the Lord!
Jere lifted his hands in praise.

Dr J: Wow! Jere, say AMEN!

WOW! AIN"T DR J GOD GUIDED???? OF COZ SHE IS! AMEN! PRAISE THE LORD! ALLELUIA!

Dr J finally acknowledges she is dealing with some strong believers here that she had no qualms about saying AMEN in the consulting room.

Jere: AMEN!

Dr J (examining his legs): Can he stand?

I stood Jere up against the chair and told Jere: STAND JERE! STAND!

Then I went on to explain how Jere is standing with his feet turned in and what we've been doing by turning it proper whenever we see him doing that.

Dr J: That's great! The last time I saw him, he was just crawling and now he's standing.

Actually, Jere was standing this way since last August 2007. He first attempted to stand on the 23rd August, 2007 to be exact. But I decided to leave it and not bother to clarify with the doctor as she's got too many patients... how was she to keep track. Thank goodness I did so myself. But I'm glad she had good things to say.

Then I took out Jere's sandals and told the doctor about how the right foot is turned in and how the leg itself seems to look like it was cramping up at the calf to make the foot turn in. She then explained it's due to the nerves. Then, I told her about how the left foot would tense up all the time and thus worsen the feet's eczema. She then explained it was some hyperdorsiflexion. Okie...another medical term for me to read up!

Dr J then looked at Jere and said: Hhmmmm.... looks like the brace and splints are not gonna help this guy if he is not gonna move and walk when he has them on.

I had told Dr J that whenever we put Dennis Brown boots for the little fella, he does not move as much.

Wow! for once the doctor are not gonna force that brace and splints down my throat!

I've been subscribing to Glenn Doman's school of thought of "Function determines structure" but the doctors all have been telling me "BRACE! SPLINTS! AFO! (whatever that means)" In other words, they were strong believers of the contrary of Glenn's belief "Structure determines function".

Think about it... if you brace, splint and what not, not giving the muscle to develop at all, and when you ever remove that brace or splint, the person is just gonna fall flat on his face! No? They would depend on the splint and brace to stand and thus never ever develop any muscle tone. So what's the point of all these brace and splints? To be dependent on them all their life?

Then Dr J said: Maybe you could consider Wellington boots

I was wondering in my mind what is that? Sounds like a high class term of the market boots that the fishmongers wear :P

Anyway, all along I've had this idea of getting Jere a good pair of boots and now's the time to ask!

Me: It seems to me that Jere's foot is turned in due to some muscle tension from the ankle up and not the foot itself? Would it be better if I get him a good comfy pair of boots like from Timberland and so he could walk in them?

Dr J: Well, you could try... yes! maybe not those rubber ones as you need to tighten up from the ankle.

Yeah heh! Goodbye to Dennis Brown boots! Finally kinda have a licence from the doctor to throw out the idea of splints and what nots.

Dr J: Looks like we can try to make him walk

Me: Yeah! of coz we can. He can also dance you know.

Picking Jere up, supporting him and standing him on the floor, Jere started to dance almost like a limp puppet but I thought that was a wonderful effort on his part.

Dr J to her medical students: Jere is born with a lesion at an upper level, about L1 L2. He had his surgery early so hopefully the nerves were preserved and he would slowly regain ...

Dr J continued to talk to her students. She talked about how important it was to have devoted and motivated parents.

Indeed! I feel very much that "The fate of a child is very much in the hands of his parents!" and so if I as a parent on earth will never give up on him, what more our heavenly father GOD!

HE WILL NEVER ABANDON US! HE WILL DELIVER US!HE HAS PLANS FOR US.... PLANS TO PROSPER, NOT TO DESTROY! AMEN!!!!

Okie back to the topic...

Me: So Dr, do I need to look out for anything with regard to his development? What do I need to do?

Dr J: Carry on whatever you are doing.

ALRIGHT!!!! OUR LORD REIGNS VICTORIOUS!

Jere then gave Hi 5 to Dr J and her two medical students, gave them a cheeky smile, said byebye and blew them kisses. Ha! I bet Jere made their day!

We walked out HAPPY! Praise the Lord! Thank You Lord!

Wednesday, March 19, 2008

Jeremiah and God

Last Saturday, 15th March 2008, we finally did it!
I went forward to the front of the whole congegation with Jeremiah to give our testimony on how God had delivered us and blessed us in St Michael's church healing mass as promised some 3 months ago. We had missed the last two healing masses as the kids were unwell and finally we did it!

This was what happened that Saturday. As usual, testimonies were being called for and I went forward with Jeremiah. Carrying him in my arms, I told of the goodness of the Lord, how faithful our God had been to us and how he had carried us through all our trials. At the end of it, I even told the congregation how Jere would call on Jesus and Mother Mary and when I was done and gave the microphone to Jeremiah, Jeremiah said "JESUS"

It was a wonderful moment. The congregation applauded and shouted "PRAISE THE LORD! ALLELUIA!"

Unfortunately we did not manage to get any pictures but here's a glimpse on how early our dear little baby was praising God! We started to take him since he was 3 months to healing masses at St Michael's church.

Thinking back, he actually started to lift his hands up in praise in March 2007. He was about 8 months then. I realise it but was too busy to tell everyone. Yeah... how terrible, I know. I should have given praise and glory to His name. Then my dear dad, Jere's ah kong discovered that while Jere was staying over when the helper went home for her home leave. Man! Was Ah Kong excited! He told anyone and everyone he saw how his grandson praise the Lord!

At 10 months, we decided we should bring a camera to capture how the little one praise God! Here it is! This picture was taken 19th May 2007.



Isn't it wonderful? Look at how Jeremiah lifts his hands up in praise and worship for the Lord!

This little baby was just born to praise God and glorify His name!

Jesus, name above all names
Beautiful Saviour, Glorious Lord!
Emmanuel! God is with us
Blessed Redeemer, Living word!


As two Sundays back when the priest gave the homily, he said,
"Whose sin was it, the father or the child that a child was born blind?"
.
.
.
.
.
.
.
.
Neither. It was no one's sin. The child was born blind so that God's works could be displayed in him. When I heard that, I thought how true it was as I see God's works being displayed in Jeremiah constantly. Praise the Lord!

5th Neurologist Assessment coming

It's time again for that routine check up.
Thurs 20th March 2008 1150hr KKH
Please pray that the doctor is guided by God and that Jeremiah's progress can only be good :) AMEN!

Tuesday, March 18, 2008

Of the brothers!

Okie...
after I ranted so much about the older one...
maybe I should do him some justice!

Nat's a sweet little one really...
He prays for Jeremiah all the time... learning terms like spina bifida, neurogenic bladder, hydrocephalus, bleh.... and praying specifically for Jeremiah's complete healing all the time...
Now hands up... how many of you know these terms? All these were alien to me till Jeremiah was born and Nat picked them all up as we had our nightly prayers.

Here's my first little angel :)



Now, ain't he handsome?

and here's the second little angel...



Ain't he a cutie?

I think they look kinda alike too!

They've really grown! Check them out in this picture taken 3rd September 2006.



Jeremiah was about 3 months then and Nat just turned 4.

My wonderful gifts from God! Thank You Lord for these blessings! AMEN!

Monday, March 17, 2008

Have we neglected the big bro?

Today I caught myself saying this to my sister after hanging up on the phone with the helper at home.

"Horrible Nat! Naughty Nat! Attention seeking NAT!!!!"
Catching myself, I shouted "HELPPPPPP!!!!!!!"

The helper had just called to say Nat was not co-operating and did not want to go to his art class(something that he had asked for and usually likes).

Why can't I find something nice to say about my son?
Why does he give the helper hell????
I just told my sister earlier that morning that Nat's a big boy now. He's a good boy and merely a few hours later, I am shouting the contrary.

Yes, he has grown! He's a great boy! But he is also very much a bully when left with the helper alone. I really cannot stand it when I see him shouting at the helper. I feel so bad and ashamed to say he's my son when he does that.

It almost seems like a vicious cycle beyond my control. The helper practises favourtism very obviously. She favours Jere more and this only leads to Nat resenting the fact and thus giving her hell everytime an opportunity arises.

I hate his attitude problem! His screaming at the helper. His rude attitude when playing with other children. Children he is not familiar with, he would be rude, like give them a black face and speak to them in a one kind tone. Children he is familiar with, he will be screaming so so loud as he plays with them.

I thought I spent a good whole of his formative years with him, teaching him and guiding him.

Why? Why did it have to turn out like that? *ANGRY*

okok... I know, I know.... please do not start whipping out solutions to me....
I just wanted to vent... that's all.

Sis says:
Afterall they are kids...

I say:
I definitely don't subscribe to the school of thought of "afterall they are kids " It is definitely not a good or valid reason at all! No! not at all! DEFINITELY NOT!

They can be taught!
DEFINITELY!
They need to be more secure about themselves.
I need to work on this.
I need to learn more about this and learn how to do it!
If I have to start all over again, I would!
Nat's just 5!
Even if it takes me double the time....
10 yrs to change him to be a better person, at least I know he will be a better teenager coz he will be 15 by then.

Nat was never a bad child to start with.

No child is ever born bad.

Quoting Suzuki, "Children are examples of life in its truest form, for they really try to live in pure love and joy."

I know deep down inside Nat's just really insecure. One thing leads to another. He becomes attention seeking.

Sometimes I get so warped when I see his behaviour, almost believing that I really had a monster for a son, almost wondering if it was a mistake at all to have kids.

BUT NO!!!! I AM NOT GONNA LET MY HEART BE TROUBLED!

NO! IT WAS NOT A MISTAKE TO HAVE KIDS! NEVER WAS!

This blog was meant to talk about my journey in faith as I walk this road with my special little boy Jeremiah. Sadly, I must admit some way or another, I may have neglected Jeremiah's older brother, yes Jeremiah's 哥哥 Nathaniel. I hardly ever talked about how I managed the older brother, Nathaniel.

Whenever people see me, they'll go
"How's Jere?"
"How's the little hero?"
"How's the little angel?"

and sometimes or rather most of the times, they forgot Jere's brother, Nathaniel. And yes, Mummy here also is guilty as charged.

How could I forget sweet little Nat?

When I was preggers, Nat would touch my tummy and ask me in anticipation when would baby pop out of mummy's tummy?

Then when I birthed Jere and when Nat came to visit, he thought baby was still in the tummy as my tummy was still huge, yeah...I probably looked as if i haven't given birth at all and the baby was not in the room as it usually was when we went to visit people who just delivered their precious.

We finally went home from hospital after 2 days without the baby of course as little Jere was stuck in Neo natal Intensive Care Unit (NICU) and Nat still kept asking where's baby? We told Nat that baby had to stay in hospital as he was not big enough to come home, which was only the half truth. Undoubtedly, baby is small but he definitely could come home in that size if he had been born normal but we did not tell Nat about baby having his spine born out, having an open neural tube defect and having one surgery after another. We thought it was probably too much for a four year old to handle then. Well, how much would he be able to comprehend of that?

Then when Jeremiah finally came home, all the focus was on Jeremiah. Suddenly all the love that Nat enjoyed seemed to be channeled to the little one. Nat seemed almost suddenly replaced. Well, that's probably how Nat must have felt. Soon, Nat started to act up alot!

Till today, 20 months later, Nat still acts up quite a bit and I can only attribute it to his insecurity. Much as I know what's the problem here, I think I very much must be able to translate my thoughts into actions. To merely want to do something about it is not enough.

Love can be had only by loving.

Love it was that made us
And it was love that saved us
Love was God's plan when He made man
God's divine nature is love
Born of God's love we must love him
that's why He made us to love Him
but only when we love all man
Can we partake of God's love
but only when we love all man
Can we partake of God's love


Nat, if you ever read this one day,
I want you to know that I love you.
I want you to know you are my wonderful gift from God and you are a star!
and I am trying my best for you.

You and Jere are my special angels!

Thank you Lord for these blessings!

Wednesday, March 5, 2008

Keloid

According to Wikipedia,
A keloid is a type of scar which results in an overgrowth of tissue at the site of a healed skin injury. Keloids are firm, rubbery lesions or shiny, fibrous nodules, and can vary from pink to flesh-colored or red to dark brown in color. A keloid scar is benign, non-contagious, and usually accompanied by severe itchiness, sharp pains, and changes in texture. In severe cases, it can affect movement of skin.



At 20 mths exactly today, Jere's battle scar look like this. This is at the part where you usually feel your backbone. Yes, Jere was born with his out... not covered. Jere has had 2 operations since. One at Day 1 of his life to cover up the open neural tube defect and the other was on the 8th day when the neuro surgeon said there was a leakage at the op site and need to do repair. That second op, the neuro surgeon put in artificial tissue. After that, the would healed and this formed. It is exactly as what is described above. "firm, rubbery lesions or shiny, fibrous nodules, and can vary from pink to flesh-colored or red to dark brown in color" depending how you look at it. And yes, it is severely itchy, that Jere scratches at it without mercy so we could hardly wear nice tees for him but rather we still have to dress him in rompers and onesies so we button up and he can't get at it... and it's so hard to find big cool looking onesies as he gets bigger by the day.

Please pray that the healing blood of Jesus be upon Jeremiah and that Jere can live life without being so affected by this. This is just the surface. We pray even more that the precious blood of Jesus covers Jeremiah from the top of his head to the soles of his feet and flows through every fibre, every nerve and every cell of Jeremiah and heal everything that has been affected by his open neural tube defect. AMEN

Battles aren't won by spears and swords...
The battle is the Lord's!


AMEN!

Tuesday, March 4, 2008

Before the MCU

Last December, 17th Dec to be exact, Jere went for his MCU, a procedure where they checked for any backflow of urine. If you refer back to the posts in Dec, you will get more understanding of it.



This was how he looked just outside the room at the diagnostic imaging department of KKH. Unsuspecting... totally trusting...

Simple child-like faith and nothing more... That's what Jesus Christ has ever asked us for.




He could even smile at the camera... That is my sweet little hero for you....

AND so our FATHER GOD delivered him from all evil....

However, after the procedure, we were too all over him to take any pics... but we were victorious with the results! Praise GOD! IF you have not read, the radiologist said something to the effect that "looks like he will recover his condition" AMEN AMEN AMEN! ALLELUIA! PRAISE THE LORD!!!!

Faith, Faith is like a child
Simple in its spirit
Generous and Kind
Willing to accept
what cannot be denied or defined
One thing
Simple child-like faith and nothing more
That's what Jesus Christ has ever asked us for
Simple child-like faith and nothing more

My BIG HERO

A long awaited pic....
I know I ought to upload more pics here as a picture paints a thousand words...
My apologies....
Without further ado

Here it is...
my pride and motivation and inspiration in life!
taken by Dixie at Shan's house on her little one's birthday party



That's Jeremiah in the ball pool, having his fun. Look at him... he's all smiles...

Thank you Lord for this child so beautifully and wonderfully made!