It was 6am in the morning and I felt Jere a little feverish... Took his temperature and indeed it was 38 deg. Quickly, I called Tim to get some paracet to administer and put a wet towel on his forehead.
I really pray it's the runny nose that has led to the fever and not the bacteria in the urine.
Lord, I lift Jeremiah up to You and ask that You would put a hedge of protection around him. Protect his spirit, body, mind and emotions from any kind of evil or ham. I specifically pray for protection from fever and infection. I pray that he will make his refuge in the shadow of Your wings until these calamities have passed by. Hide him Lord from any kind of evil that would come agains him. Keep him safe from and hidden dangers and let no weapon formed against him be able to prosper. Thank You Lord for Your many promises of protection. Keep him safe wherever he goes. In Jesus name, I pray AMEN!
Thursday, October 30, 2008
Tuesday, October 28, 2008
The Results
Sunday and Monday passed. The nurses said they don't open on Sunday and Monday is a public holiday so I could only get the results on Tues and they would call then. Came Tuesday morning, first thing I called KKH. Nisha first spoke to me. Passed me to Shikin and said that there is bacteria growth in the urine culture and it's an urgent and serious case. Note the words URGENT AND SERIOUS they used. Then she continued to ask when will you be free to come down? I replied if it was urgent and serious, why do you ask me when will you be free to come down? Shouldn't I be attended to immediately?
Shikin: Oh, then you can come down immediately if you can but you won't be attended by Dr Y ( the dr that Jere had been seeing all along) You will be attended to by the attending dr. Dr Y has instructed a bladder wash out, an indwelling catheter for 5-7 days and a change of antibiotics.
Me: What? What's a bladder washout ?(quite intimidated by the term)
Shikin: It's nothing really. It's just putting the catheter in, putting saline in and flushing out the bladder.
Me: What's the in dwelling catheter about?
Shikin: Dr Y said gotta put the catheter in and leave it there for at least 5 days.
Me: When can I see Dr Y so that I can hear from her what is going on?
Shikin: Thursday is the earliest.
Me: so if it's that serious and urgent, can we wait till thurs?
Shikin: If you can come down now then no need wait till Thurs. if Not, we wait till thurs. it depends on you mummy.
Me: what do you mean depends on me if it is urgent and serious? can it depend on me?
Shikin: Thurs is only 2 days.
Me: I really don't quite understand this. One hand you tell me urgent and serious. then you tell me depend on me and wait.
Shikin: hold on...
I heard a different voice saying hello.
Me: Hello hello, who is this?
Nisha: this is Nisha.
Me: What's going on? you guys juz pass me here and there.... Ok, Can you fax me the results and let me see?
Nisha: Results are private and confidential.
Me: What do you mean private and confidential? I'm the mother and I am requesting for it.
Nisha: You can come down personally to get it.
Me: ok I will do that
I hung up. Fear has certainly gotten a part of me with the words URGENT AND SERIOUS. I called Tim immediately and asked him how? what's the next course of action? I sms my prayer loop straightaway with the update.I told Tim I was not quite comfortable to go to KKH straightaway as an in dwelling catheter (IDC) means to be warded and how can a baby deal with an IDC? I said I like to go and retrieve the results and go seek a second opinion with the paedaetrician. Tim agreed.I hung up with Tim and still not quite satisfied, I called KKH again. This time, I asked to speak to Staff Zhang and asked what exactly is going on. Staff Zhang was more informative. She told me what was the name of the bacteria growth - enterococcus faecalis and what it was responsive to - amoxy and augmentin so that's why the call to change of antibiotics and she also explained that neurogenic bladder kids would usually do the bladder washout and not normal kids. Then I told her I was not comfortable with the IDC and won't do that. She said ok, she will inform Dr Y and asked me first to go down and do the wash out and get the antibiotics.
Now, I was confused. Should I go down and do the washout? Or should I wait till Dr Y explain to me? I called Tim again. Tim said to go to Mt A to seek our paed opinion and treatment of antibiotics. Tim said if we were to go to KKH now, we may well be warded immediately.
KKH or MT A?
Bernard from Clouds of Praise returned the sms saying he like to visit Jere. I told him I was heading to hospital and he said he will be arriving soon so I waited.
Bernard arrived soon and prayed over Jere and asked me what's my course of action. I told him I was thinking of a second opinion and he said LET'S GO and he would fetch me there.
Quickly I changed and rushed down to Mt A to see Dr Simon.
Dr Simon heard the whole story and ordered another urine test to see if the wbc was on a downward trend. He then said the good thing is Jere is looking well and happy. Then this time I called KKH again to ask if they could fax me the results and God bless, they did. Dr Simon then prescribed the Augmentin for me and Tim said to stay with Dr Simon's treatment till we see Dr Y on Thurs.
So Jere's now on Augmentin.
Will update again.
Thank you Lord for leading us to Mt A. I know you sent your angel to lead us there.
Meantime, please pray for Jere's protection and that we take the right course of action. Also that the doctors and nurses be blessed and guided when we see them again especially the doctors and nurses at KKH children surgery centre. AMEN.
Shikin: Oh, then you can come down immediately if you can but you won't be attended by Dr Y ( the dr that Jere had been seeing all along) You will be attended to by the attending dr. Dr Y has instructed a bladder wash out, an indwelling catheter for 5-7 days and a change of antibiotics.
Me: What? What's a bladder washout ?(quite intimidated by the term)
Shikin: It's nothing really. It's just putting the catheter in, putting saline in and flushing out the bladder.
Me: What's the in dwelling catheter about?
Shikin: Dr Y said gotta put the catheter in and leave it there for at least 5 days.
Me: When can I see Dr Y so that I can hear from her what is going on?
Shikin: Thursday is the earliest.
Me: so if it's that serious and urgent, can we wait till thurs?
Shikin: If you can come down now then no need wait till Thurs. if Not, we wait till thurs. it depends on you mummy.
Me: what do you mean depends on me if it is urgent and serious? can it depend on me?
Shikin: Thurs is only 2 days.
Me: I really don't quite understand this. One hand you tell me urgent and serious. then you tell me depend on me and wait.
Shikin: hold on...
I heard a different voice saying hello.
Me: Hello hello, who is this?
Nisha: this is Nisha.
Me: What's going on? you guys juz pass me here and there.... Ok, Can you fax me the results and let me see?
Nisha: Results are private and confidential.
Me: What do you mean private and confidential? I'm the mother and I am requesting for it.
Nisha: You can come down personally to get it.
Me: ok I will do that
I hung up. Fear has certainly gotten a part of me with the words URGENT AND SERIOUS. I called Tim immediately and asked him how? what's the next course of action? I sms my prayer loop straightaway with the update.I told Tim I was not quite comfortable to go to KKH straightaway as an in dwelling catheter (IDC) means to be warded and how can a baby deal with an IDC? I said I like to go and retrieve the results and go seek a second opinion with the paedaetrician. Tim agreed.I hung up with Tim and still not quite satisfied, I called KKH again. This time, I asked to speak to Staff Zhang and asked what exactly is going on. Staff Zhang was more informative. She told me what was the name of the bacteria growth - enterococcus faecalis and what it was responsive to - amoxy and augmentin so that's why the call to change of antibiotics and she also explained that neurogenic bladder kids would usually do the bladder washout and not normal kids. Then I told her I was not comfortable with the IDC and won't do that. She said ok, she will inform Dr Y and asked me first to go down and do the wash out and get the antibiotics.
Now, I was confused. Should I go down and do the washout? Or should I wait till Dr Y explain to me? I called Tim again. Tim said to go to Mt A to seek our paed opinion and treatment of antibiotics. Tim said if we were to go to KKH now, we may well be warded immediately.
KKH or MT A?
Bernard from Clouds of Praise returned the sms saying he like to visit Jere. I told him I was heading to hospital and he said he will be arriving soon so I waited.
Bernard arrived soon and prayed over Jere and asked me what's my course of action. I told him I was thinking of a second opinion and he said LET'S GO and he would fetch me there.
Quickly I changed and rushed down to Mt A to see Dr Simon.
Dr Simon heard the whole story and ordered another urine test to see if the wbc was on a downward trend. He then said the good thing is Jere is looking well and happy. Then this time I called KKH again to ask if they could fax me the results and God bless, they did. Dr Simon then prescribed the Augmentin for me and Tim said to stay with Dr Simon's treatment till we see Dr Y on Thurs.
So Jere's now on Augmentin.
Will update again.
Thank you Lord for leading us to Mt A. I know you sent your angel to lead us there.
Meantime, please pray for Jere's protection and that we take the right course of action. Also that the doctors and nurses be blessed and guided when we see them again especially the doctors and nurses at KKH children surgery centre. AMEN.
Saturday, October 25, 2008
Saturday.... Results????
I tried to call all morning but no one answered the phone.
Lord, I come to you in Jesus' name and submit Jeremiah to You. Jeremiah's our beautiful gift from You, Father. Thank you Lord for this precious gift of this child. Lord, I know that You have given Jeremiah to me to care for and raise. Help me then Lord to do that. Show me places where I continue to hang on for him and enable me to release him into your care and protection. Help me Lord not to live in fear of possible dangers, but in the joy and peace of knowing that You are in control and this day I release my child, Jeremiah into Your hands and trust my child to You. I know that You are in control Lord. You alone know what is best for him. You alone know what he needs. I commit myself to pray for everything concerning him that I can think of or that You put upon my heart. Teach me then Lord how to pray and guide me in what to pray about. Help me not to impose my own will but Yours be done in his life when I'm praying for Jeremiah.
I thank You Father that I don't have to rely on the world's unreliable and ever-changing methods for child rearing but that I can have clear directions from Your Word and wisdom as I pray to You for answers.
Thank You Lord. Praise you Lord! AMEN!
Somehow, I feel a kinda peace. I think this peace would not have descended upon me if I had not released it to God and ask Him to be in charge. I thank you all you prayer partners that have been with me.
You shall go out with joy and be led forth with peace
the mountains and the hills shall break forth before you
there'll be shouts of joy
and all the trees of the fields
will clap will clap their hands ...
and all the trees of the fields will clap their hands
the trees of the fields will clap their hands (2X)
will clap will clap their hands ...
Yes. God will make a way.
This just released me to see to the rest of the things I so needed to do. Today's Korkor Nat's graduation! Gotta run to Nat's Graduation!
Yes! God is in control.
He can turn the tides and calm the angry seas.
Yes. He can be everywhere, know everything. and He will take care of Jere. Thank You Lord. Jere will be well! AMEN!
Lord, I come to you in Jesus' name and submit Jeremiah to You. Jeremiah's our beautiful gift from You, Father. Thank you Lord for this precious gift of this child. Lord, I know that You have given Jeremiah to me to care for and raise. Help me then Lord to do that. Show me places where I continue to hang on for him and enable me to release him into your care and protection. Help me Lord not to live in fear of possible dangers, but in the joy and peace of knowing that You are in control and this day I release my child, Jeremiah into Your hands and trust my child to You. I know that You are in control Lord. You alone know what is best for him. You alone know what he needs. I commit myself to pray for everything concerning him that I can think of or that You put upon my heart. Teach me then Lord how to pray and guide me in what to pray about. Help me not to impose my own will but Yours be done in his life when I'm praying for Jeremiah.
I thank You Father that I don't have to rely on the world's unreliable and ever-changing methods for child rearing but that I can have clear directions from Your Word and wisdom as I pray to You for answers.
Thank You Lord. Praise you Lord! AMEN!
Somehow, I feel a kinda peace. I think this peace would not have descended upon me if I had not released it to God and ask Him to be in charge. I thank you all you prayer partners that have been with me.
You shall go out with joy and be led forth with peace
the mountains and the hills shall break forth before you
there'll be shouts of joy
and all the trees of the fields
will clap will clap their hands ...
and all the trees of the fields will clap their hands
the trees of the fields will clap their hands (2X)
will clap will clap their hands ...
Yes. God will make a way.
This just released me to see to the rest of the things I so needed to do. Today's Korkor Nat's graduation! Gotta run to Nat's Graduation!
Yes! God is in control.
He can turn the tides and calm the angry seas.
Yes. He can be everywhere, know everything. and He will take care of Jere. Thank You Lord. Jere will be well! AMEN!
Friday, October 24, 2008
Friday.... Results?
No one called all day. It was 4 plus in the evening and I figured I had better call or they would call it a day at 5pm.
I called and got through to Staff Zhang. I hung on the line as she traced the records.
Staff Zhang: The culture is still not out. The second test showed even higher count of white blood cells.
Me: what is the number?
Staff Zhang: The first was 500 plus and the second is 2000 plus. The culture test is still not out.
Me: ok thanks.
no... that's certainly not what I like to hear.
Quickly, I smsed all my dear brothers in sisters in Christ to storm heaven for protection upon this precious child, Jeremiah.
Lord, I lift Jeremiah up to You and ask that You would put a hedge of protection around him. Protect his spirit, body, mind and emotions from any kind of evil or harm. I pray specifically for protection from accidents, disease, injury, or any other physical, mental, or emotional abuse. I pray that he will make his refuge in the shadow of your wings untill those calamities have passed by (Psalm 57:1). Hide him from any kind of evil influences that would come against him. Keep him safe from any hidden dangers and let no weapon form against him be able to prosper.
Thank You Lord for Your many promises of protection. Help Jere to walk in Your ways and in obedience to Your will so that he never comes out from under the umbrella of protection. Keep Jere safe in all he does and wherever he goes. In Jesus' name I pray.
AMEN!
ON EAGLE'S WINGS
You who dwell in the shelter of the Lord,
who abide in His shadow for life,
say to the Lord: "My refuge, my rock in whom I trust!"
Refrain: And He will raise you up on eagles’ wings,
bear you on the breath of dawn,
make you to shine like the sun,
and hold you in the palm of His hand.
The snare of the fowler will never capture you,
and famine will bring you no fear:
under His wings your refuge, His faithfulness your shield.
Refrain: And He will raise you up on eagles’ wings,
bear you on the breath of dawn,
make you to shine like the sun,
and hold you in the palm of His hand.
You need not fear the terror of the night,
nor the arrow that flies by day;
though thousands fall about you, near you it shall not come.
Refrain: And He will raise you up on eagles’ wings,
bear you on the breath of dawn,
make you to shine like the sun,
and hold you in the palm of His hand.
For to His angels He's given a command
to guard you in all of your ways;
upon their hands they will bear you up,
lest you dash your foot against a stone.
Refrain: And He will raise you up on eagles’ wings,
bear you on the breath of dawn,
make you to shine like the sun,
and hold you in the palm of His hand
I called and got through to Staff Zhang. I hung on the line as she traced the records.
Staff Zhang: The culture is still not out. The second test showed even higher count of white blood cells.
Me: what is the number?
Staff Zhang: The first was 500 plus and the second is 2000 plus. The culture test is still not out.
Me: ok thanks.
no... that's certainly not what I like to hear.
Quickly, I smsed all my dear brothers in sisters in Christ to storm heaven for protection upon this precious child, Jeremiah.
Lord, I lift Jeremiah up to You and ask that You would put a hedge of protection around him. Protect his spirit, body, mind and emotions from any kind of evil or harm. I pray specifically for protection from accidents, disease, injury, or any other physical, mental, or emotional abuse. I pray that he will make his refuge in the shadow of your wings untill those calamities have passed by (Psalm 57:1). Hide him from any kind of evil influences that would come against him. Keep him safe from any hidden dangers and let no weapon form against him be able to prosper.
Thank You Lord for Your many promises of protection. Help Jere to walk in Your ways and in obedience to Your will so that he never comes out from under the umbrella of protection. Keep Jere safe in all he does and wherever he goes. In Jesus' name I pray.
AMEN!
ON EAGLE'S WINGS
You who dwell in the shelter of the Lord,
who abide in His shadow for life,
say to the Lord: "My refuge, my rock in whom I trust!"
Refrain: And He will raise you up on eagles’ wings,
bear you on the breath of dawn,
make you to shine like the sun,
and hold you in the palm of His hand.
The snare of the fowler will never capture you,
and famine will bring you no fear:
under His wings your refuge, His faithfulness your shield.
Refrain: And He will raise you up on eagles’ wings,
bear you on the breath of dawn,
make you to shine like the sun,
and hold you in the palm of His hand.
You need not fear the terror of the night,
nor the arrow that flies by day;
though thousands fall about you, near you it shall not come.
Refrain: And He will raise you up on eagles’ wings,
bear you on the breath of dawn,
make you to shine like the sun,
and hold you in the palm of His hand.
For to His angels He's given a command
to guard you in all of your ways;
upon their hands they will bear you up,
lest you dash your foot against a stone.
Refrain: And He will raise you up on eagles’ wings,
bear you on the breath of dawn,
make you to shine like the sun,
and hold you in the palm of His hand
Thursday, October 23, 2008
Our Urologist Appointment
Thursday came and I headed to KKH with Jere, calling the dear husband before I left the house to meet me there as the last appointment, this doctor had threatened to have me up for neglect and abuse. Not that I am guilty as charged, but I don't quite enjoy being abused by her especially in Jere's presence as Jere is such a sensitive child that he knows when I am hurt.
I reached the hospital about 1215pm but Tim was still not there. I prayed that Tim would reach in time and the doctor would be kind. I sat down with Jere and fed him some cereal at the same time saying my rosary, as frankly, I know I can't get thru the doctor's office without God's protection.
After about half an hour, Jeremiah's name was called. I was a little apprehensive about going in there alone as Tim had not reach. Nevertheless, I went in.
Small talk
Me: (upon entering the dr's office) Hello dr. Jere, say hello Dr.
Dr Y: Hello Jeremy, How are you?
Me: (prompting Jere) Jere, HOW A....R....E YOU?
Jere tends to get confused between How are you questions and How old are you? :P
Jere: Good. Fine thank you.
Dr Y: How old are you now?
Me: Jere, HOW O...L.....D are you? (emphasising the OLD)
Jere: TWO.... YEARS OLD
Dr Y: No, la...You're more than that right? (flipping her case notes to check Jere's exact age.) So how mummy? Are you ready to CIC (Clean Intermittent Catheterisation)?
Jere looked a little confused. Come on Doc, give the child a break....Surely you don't expect the 2 yr old to tell you 2 yr 3 months right?
Dr Y: (at her nurse manager)Can you measure his head circumference? (looking at his head with disapproval as if it was really big)
Yeah... it was strange that a nurse manager was in the office. probably because of the drama the dr created last time threatening to have me up for neglect and abuse and i broke down so bad till Tim marched into the dr's office demanding to know what exactly she had done.)
Me: Dr, Dr Janice Wong, the neurologist is monitoring his head circumference and it's fine.
Dr Y: How long ago is that?
Me: It's really recent. Maybe just some weeks ago.
Dr Y: ( still quite unbelievingly flipping her case notes, looking at the june date) no... that's months ago...
Me: No Dr, I am sure it's quite recent. Please look properly. ( almost wanting to turn the page for her)
Dr Y: (turned the page) oh yes, just in September. 52.5cm. (looking at her nurse manager)
Nurse Manager G: Yes, 52.5cm.
Speaking Blessings
Dr Y: ok, can you put him on the bed for me to check?
Me: Sure. Jere, can mummy put you on the bed for dr to check?
Jere nodded.
I put Jere on the bed, took out his diapers and then waited for the dr to come over.
Then Dr Y walked over, looked at Jere.
Dr Y: Come! Let me see how bad you have become (almost immediately catching herself) I mean let me see how good you are.
Usually whenever our dear dr spoke a curse, I would correct her curse into a blessing. This time, the Lord went before me and blessed our dear doctor and reminded her to speak a blessing :)
Daddy arrives!
Just then, a knock was heard on the door and my dear husband Tim entered. THANK YOU LORD!
Dr Y: Hello Daddy! so how? Are you ready to do the CIC?
Tim: No Dr. but if we are ready when would it be?
Dr Y: (grabbing the opportunity immediately) OH DADDY! IT'S WONDERFUL YOU AGREED.
Tim: No! NO! DR, I HAVEN'T AGREED. I am just asking IF.
Dr Y: (looking at her nurse) DADDY HAS AGREED! (starts writing on her case notes Daddy agrees to CIC)
Dr Y probably never would have thought I would have remembered what went on in that room and document every part of it.
Dr Y: SO when you wanna start? now?
Tim: No, Dr. I am not ready. I will pray about it and when I have peace , I will let you know when the holy spirit prompts me.
Dr Y: No Daddy, you agreed. You just come in and we will train you. We will hold your hand till you are confident. what about next tues?
I glared at Tim.
Tim: No Dr. I am not ready.
Me: Well, Dr, I have seen how this CIC is being done. Maybe, we can arrange for daddy to see how it's done and we'll see?
Dr Y: Great! So when should we do it? Next tues? ok. I put you on next tues? Has Jere had any infections so far? Have you been giving him his antibiotics?
Me: No. no infections. Praise God!
Dr Y: (looking at her case notes) it's been a long time since you did a urine test. Shall we order for one now? How? You wanna do it now? or you wanna go home and catch it?
Usually last time, I would catch it at home and bring it straight to the hospital.
Me: Dr, since you wanna show daddy how to do the catheter, why don't you CIC out a sample for your test?
Dr Y: Great! That's a good idea. He has not had any infections right? You been giving him his antibiotics right?
Me: No. No infections.
Dr Y: When we start the CIC, you must give him the antibiotics properly coz higher chance of infection.
Me: (looking at Tim) means we gotta start giving him the antibiotics again? I have actually weaned Jere off his antibiotics for a good 3 months.
I did not like the idea of Jere being on daily antibiotics so I slowly weaned him off and just prayed for protection everyday. Yeah. Some of you probably think I am such a fool. But really, in the Lord I trust. If you asked me to take risks such as investing in stocks and shares, my risk appetite is not that great for that :P
Dr Y stared at me, quite shocked that I took such a risk.
Dr Y: then today we cant do the catheter since you did not give him any antibiotics.we'll just catch a mid stream and you come back later we will show daddy how to CIC.
Me: what do you mean? If you gonna show daddy later how to do the catheter thing, you might as well CIC the sample now to send for test and we need not come back later.
Just how do they work, I couldn't quite comprehend.
Dr Y: No no... come! (looking at her nurse) attach a urine bag for him to collect the urine sample. (looking at Tim and me) you guys go for your lunch coz the urine test will take about an hour. then you come back after your lunch and we do the catheter.
Me: (still not quite understanding) WHY? WHY CANT YOU CATHETER NOW THE URINE SAMPLE? DADDY IS HERE AND HE CAN SEE YOU GUYS DO IT AND YOU GUYS GET A CLEANER SAMPLE.
DR Y and the nurses: NO NO.... almost echoing each other.
They sent us to the treatment room and there they started to attach the urine bag and told us to either wait there for Jere to pee or go take a walk till he pees. I then asked them again why can't they catheter straight and they just refused me. I surrendered. I went to get Jere water to drink to fill his bladder so that he would pee quickly for them as i was almost starving as It was already almost 2pm. The nurses walked out of the room. Jere then tore out the urine bag and peed out of the urine bag. Oops! I shouted for the nurse and the nurse came back to re attach the bag. It wasn't long before Jere peed. Then we left for our lunch.
I told Tim let's get out of here for lunch so we headed to Novena Square. Just as we were in the middle of our lunch, my mobile rang. It was about 3.30pm.
Nurse: Mummy, Jeremiah's urine test is not so good. You guys must come back for us to catheter another sample.
Me: huh? what do you mean? how come just now ask you all to catheter, you all don't want and now ask me to come back to catheter?
Nurse: errr... mummy, you just come back for us to catheter, the dr will explain to you. ok. just come back as soon as you can.
the line went dead.
I looked at tim.
Me: Did you hear that? the urine test is no good and they are asking us to go back to catheter a sample now. I just don't understand why they just wont catheter in the first place just now.
Tim gave a resigned shrug.
I quickly finished feeding Jere and we headed back to the hospital. We headed straight to the nurses' office.
When I saw the nurse manager, I asked her why didn't they do it earlier as I requested and she looked at the wall, looked at the floor, looked at the ceiling but just refused to looked at me, giving me a sheepish answer of.... "yes yes... wait wait we will do it."
I was a little miffed and asked again " I AM ASKING WHY YOU GUYS WON'T DO IT JUST NOW AND NOW YOU WANNA DO IT? WHAT'S THE REASON MAY I ASK?"
The dear nurse manager walked off, saying, "We'll call you when we are ready to do for you."
I was left stranded there carrying Jere.
Finally after a good 20 minutes or so, one of the nurses came out of the room and said, "ok we'll catheter him now"
I carried Jere in and continued to ask the nurses. There was was one senior staff nurse, one nurse and one manager and all of them just simply ignored my question.
Finally, I gave up and said, "I wanna see the Dr. I wanna know WHY JUST NOW I ASKED YOU GUYS TO CATHETER YOU REFUSED AND NOW YOU ASKED ME BACK TO CATHETER. IS THERE ANY SPECIFIC REASON."
The senior staff nurse then said, "Ok, we will get the dr to speak to you"
We finished the catheter session and waiting another good 20 minutes or so, we were back into Dr Y's office.
Me: Dr, WHY JUST NOW I ASKED YOU GUYS TO CATHETER YOU REFUSED AND NOW YOU ASKED ME BACK TO CATHETER. IS THERE ANY SPECIFIC REASON?
Dr Y: Oh... we were afraid to scare you off then you would not return for us to teach you to catheter....
Me: No, Dr. I asked you several times to straight away catheter so that we need not return.
Dr Y: I know you are very scared of the catheter so I don't want to scare you off.
Me: What are you talking Dr? (getting a little exasperated) I gave permission just now to catheter. Why didn't you all do it straight? Instead you wanted to use the urine bag and asked us back to catheter?
Dr Y: (flipping her case notes) The last times when we did the urine test, you did not do catheter and the tests were fine so there's no necessity to do a catheter.
Me: (getting a little confused) then why do you ask me to catheter every 4 hourly?
Dr Y: I asked you to catheter to drain the bladder.... not to get a urine sample.
Me: but since you wanna catheter, why can't you catheter to get the sample?
Dr Y: oh ok. if that's what you want next time, we will catheter ok?
Me: Dr, that's not what I am asking for. I am asking why? the reason WHY JUST NOW I ASKED YOU GUYS TO CATHETER YOU REFUSED AND NOW YOU ASKED ME BACK TO CATHETER. IS THERE ANY SPECIFIC REASON?
Dr Y: The last times when we did the urine test, you did not do catheter and the tests were fine so there's no necessity to do a catheter
Me: No Dr. THat's not what I am asking about.....
Dr Y: okok i put a note here... next time we want a urine sample, we catheter....
Me: That's not what I am asking about.... I am asking why? the reason WHY JUST NOW I ASKED YOU GUYS TO CATHETER YOU REFUSED AND NOW YOU ASKED ME BACK TO CATHETER. IS THERE ANY SPECIFIC REASON?
Dr Y: The last times when we did the urine test, you did not do catheter and the tests were fine so there's no necessity to do a catheter.
Me: (giving up) Arrrrrgghhhhh.... forget it! That's a lame and definitely not a reason. You are not answering to my question.
Dr Y: ok mummy. I gotta double you dosage of the antibiotic now. if there is any fever, please come in straight to the A & E. we will then put in an in dwelling catheter and.....
Tim: (cutting the dr short) IT WILL NOT HAPPEN.
Dr Y: ok, please go and ask the pharmacist to calculate for you how much of the antibiotics you must take now. We will trace the next urine test. This urine test shows a high white blood cell count of 500 plus when usual level should be 0-10. We will call you tomorrow or sat. If it's good, results should be out tomorrow. if not good, maybe sat or next tues. we don't work on sunday and monday. if any case just come in straight to A & E. hopefully the antibiotics would help.
Me: Please call us no matter what is the results.
The nurses agreed.
Not quite convinced, I got their number.
We left the room and headed to pharmacy.
Please pray for Jere's white blood cell count to return to normal.
I reached the hospital about 1215pm but Tim was still not there. I prayed that Tim would reach in time and the doctor would be kind. I sat down with Jere and fed him some cereal at the same time saying my rosary, as frankly, I know I can't get thru the doctor's office without God's protection.
After about half an hour, Jeremiah's name was called. I was a little apprehensive about going in there alone as Tim had not reach. Nevertheless, I went in.
Small talk
Me: (upon entering the dr's office) Hello dr. Jere, say hello Dr.
Dr Y: Hello Jeremy, How are you?
Me: (prompting Jere) Jere, HOW A....R....E YOU?
Jere tends to get confused between How are you questions and How old are you? :P
Jere: Good. Fine thank you.
Dr Y: How old are you now?
Me: Jere, HOW O...L.....D are you? (emphasising the OLD)
Jere: TWO.... YEARS OLD
Dr Y: No, la...You're more than that right? (flipping her case notes to check Jere's exact age.) So how mummy? Are you ready to CIC (Clean Intermittent Catheterisation)?
Jere looked a little confused. Come on Doc, give the child a break....Surely you don't expect the 2 yr old to tell you 2 yr 3 months right?
Dr Y: (at her nurse manager)Can you measure his head circumference? (looking at his head with disapproval as if it was really big)
Yeah... it was strange that a nurse manager was in the office. probably because of the drama the dr created last time threatening to have me up for neglect and abuse and i broke down so bad till Tim marched into the dr's office demanding to know what exactly she had done.)
Me: Dr, Dr Janice Wong, the neurologist is monitoring his head circumference and it's fine.
Dr Y: How long ago is that?
Me: It's really recent. Maybe just some weeks ago.
Dr Y: ( still quite unbelievingly flipping her case notes, looking at the june date) no... that's months ago...
Me: No Dr, I am sure it's quite recent. Please look properly. ( almost wanting to turn the page for her)
Dr Y: (turned the page) oh yes, just in September. 52.5cm. (looking at her nurse manager)
Nurse Manager G: Yes, 52.5cm.
Speaking Blessings
Dr Y: ok, can you put him on the bed for me to check?
Me: Sure. Jere, can mummy put you on the bed for dr to check?
Jere nodded.
I put Jere on the bed, took out his diapers and then waited for the dr to come over.
Then Dr Y walked over, looked at Jere.
Dr Y: Come! Let me see how bad you have become (almost immediately catching herself) I mean let me see how good you are.
Usually whenever our dear dr spoke a curse, I would correct her curse into a blessing. This time, the Lord went before me and blessed our dear doctor and reminded her to speak a blessing :)
Daddy arrives!
Just then, a knock was heard on the door and my dear husband Tim entered. THANK YOU LORD!
Dr Y: Hello Daddy! so how? Are you ready to do the CIC?
Tim: No Dr. but if we are ready when would it be?
Dr Y: (grabbing the opportunity immediately) OH DADDY! IT'S WONDERFUL YOU AGREED.
Tim: No! NO! DR, I HAVEN'T AGREED. I am just asking IF.
Dr Y: (looking at her nurse) DADDY HAS AGREED! (starts writing on her case notes Daddy agrees to CIC)
Dr Y probably never would have thought I would have remembered what went on in that room and document every part of it.
Dr Y: SO when you wanna start? now?
Tim: No, Dr. I am not ready. I will pray about it and when I have peace , I will let you know when the holy spirit prompts me.
Dr Y: No Daddy, you agreed. You just come in and we will train you. We will hold your hand till you are confident. what about next tues?
I glared at Tim.
Tim: No Dr. I am not ready.
Me: Well, Dr, I have seen how this CIC is being done. Maybe, we can arrange for daddy to see how it's done and we'll see?
Dr Y: Great! So when should we do it? Next tues? ok. I put you on next tues? Has Jere had any infections so far? Have you been giving him his antibiotics?
Me: No. no infections. Praise God!
Dr Y: (looking at her case notes) it's been a long time since you did a urine test. Shall we order for one now? How? You wanna do it now? or you wanna go home and catch it?
Usually last time, I would catch it at home and bring it straight to the hospital.
Me: Dr, since you wanna show daddy how to do the catheter, why don't you CIC out a sample for your test?
Dr Y: Great! That's a good idea. He has not had any infections right? You been giving him his antibiotics right?
Me: No. No infections.
Dr Y: When we start the CIC, you must give him the antibiotics properly coz higher chance of infection.
Me: (looking at Tim) means we gotta start giving him the antibiotics again? I have actually weaned Jere off his antibiotics for a good 3 months.
I did not like the idea of Jere being on daily antibiotics so I slowly weaned him off and just prayed for protection everyday. Yeah. Some of you probably think I am such a fool. But really, in the Lord I trust. If you asked me to take risks such as investing in stocks and shares, my risk appetite is not that great for that :P
Dr Y stared at me, quite shocked that I took such a risk.
Dr Y: then today we cant do the catheter since you did not give him any antibiotics.we'll just catch a mid stream and you come back later we will show daddy how to CIC.
Me: what do you mean? If you gonna show daddy later how to do the catheter thing, you might as well CIC the sample now to send for test and we need not come back later.
Just how do they work, I couldn't quite comprehend.
Dr Y: No no... come! (looking at her nurse) attach a urine bag for him to collect the urine sample. (looking at Tim and me) you guys go for your lunch coz the urine test will take about an hour. then you come back after your lunch and we do the catheter.
Me: (still not quite understanding) WHY? WHY CANT YOU CATHETER NOW THE URINE SAMPLE? DADDY IS HERE AND HE CAN SEE YOU GUYS DO IT AND YOU GUYS GET A CLEANER SAMPLE.
DR Y and the nurses: NO NO.... almost echoing each other.
They sent us to the treatment room and there they started to attach the urine bag and told us to either wait there for Jere to pee or go take a walk till he pees. I then asked them again why can't they catheter straight and they just refused me. I surrendered. I went to get Jere water to drink to fill his bladder so that he would pee quickly for them as i was almost starving as It was already almost 2pm. The nurses walked out of the room. Jere then tore out the urine bag and peed out of the urine bag. Oops! I shouted for the nurse and the nurse came back to re attach the bag. It wasn't long before Jere peed. Then we left for our lunch.
I told Tim let's get out of here for lunch so we headed to Novena Square. Just as we were in the middle of our lunch, my mobile rang. It was about 3.30pm.
Nurse: Mummy, Jeremiah's urine test is not so good. You guys must come back for us to catheter another sample.
Me: huh? what do you mean? how come just now ask you all to catheter, you all don't want and now ask me to come back to catheter?
Nurse: errr... mummy, you just come back for us to catheter, the dr will explain to you. ok. just come back as soon as you can.
the line went dead.
I looked at tim.
Me: Did you hear that? the urine test is no good and they are asking us to go back to catheter a sample now. I just don't understand why they just wont catheter in the first place just now.
Tim gave a resigned shrug.
I quickly finished feeding Jere and we headed back to the hospital. We headed straight to the nurses' office.
When I saw the nurse manager, I asked her why didn't they do it earlier as I requested and she looked at the wall, looked at the floor, looked at the ceiling but just refused to looked at me, giving me a sheepish answer of.... "yes yes... wait wait we will do it."
I was a little miffed and asked again " I AM ASKING WHY YOU GUYS WON'T DO IT JUST NOW AND NOW YOU WANNA DO IT? WHAT'S THE REASON MAY I ASK?"
The dear nurse manager walked off, saying, "We'll call you when we are ready to do for you."
I was left stranded there carrying Jere.
Finally after a good 20 minutes or so, one of the nurses came out of the room and said, "ok we'll catheter him now"
I carried Jere in and continued to ask the nurses. There was was one senior staff nurse, one nurse and one manager and all of them just simply ignored my question.
Finally, I gave up and said, "I wanna see the Dr. I wanna know WHY JUST NOW I ASKED YOU GUYS TO CATHETER YOU REFUSED AND NOW YOU ASKED ME BACK TO CATHETER. IS THERE ANY SPECIFIC REASON."
The senior staff nurse then said, "Ok, we will get the dr to speak to you"
We finished the catheter session and waiting another good 20 minutes or so, we were back into Dr Y's office.
Me: Dr, WHY JUST NOW I ASKED YOU GUYS TO CATHETER YOU REFUSED AND NOW YOU ASKED ME BACK TO CATHETER. IS THERE ANY SPECIFIC REASON?
Dr Y: Oh... we were afraid to scare you off then you would not return for us to teach you to catheter....
Me: No, Dr. I asked you several times to straight away catheter so that we need not return.
Dr Y: I know you are very scared of the catheter so I don't want to scare you off.
Me: What are you talking Dr? (getting a little exasperated) I gave permission just now to catheter. Why didn't you all do it straight? Instead you wanted to use the urine bag and asked us back to catheter?
Dr Y: (flipping her case notes) The last times when we did the urine test, you did not do catheter and the tests were fine so there's no necessity to do a catheter.
Me: (getting a little confused) then why do you ask me to catheter every 4 hourly?
Dr Y: I asked you to catheter to drain the bladder.... not to get a urine sample.
Me: but since you wanna catheter, why can't you catheter to get the sample?
Dr Y: oh ok. if that's what you want next time, we will catheter ok?
Me: Dr, that's not what I am asking for. I am asking why? the reason WHY JUST NOW I ASKED YOU GUYS TO CATHETER YOU REFUSED AND NOW YOU ASKED ME BACK TO CATHETER. IS THERE ANY SPECIFIC REASON?
Dr Y: The last times when we did the urine test, you did not do catheter and the tests were fine so there's no necessity to do a catheter
Me: No Dr. THat's not what I am asking about.....
Dr Y: okok i put a note here... next time we want a urine sample, we catheter....
Me: That's not what I am asking about.... I am asking why? the reason WHY JUST NOW I ASKED YOU GUYS TO CATHETER YOU REFUSED AND NOW YOU ASKED ME BACK TO CATHETER. IS THERE ANY SPECIFIC REASON?
Dr Y: The last times when we did the urine test, you did not do catheter and the tests were fine so there's no necessity to do a catheter.
Me: (giving up) Arrrrrgghhhhh.... forget it! That's a lame and definitely not a reason. You are not answering to my question.
Dr Y: ok mummy. I gotta double you dosage of the antibiotic now. if there is any fever, please come in straight to the A & E. we will then put in an in dwelling catheter and.....
Tim: (cutting the dr short) IT WILL NOT HAPPEN.
Dr Y: ok, please go and ask the pharmacist to calculate for you how much of the antibiotics you must take now. We will trace the next urine test. This urine test shows a high white blood cell count of 500 plus when usual level should be 0-10. We will call you tomorrow or sat. If it's good, results should be out tomorrow. if not good, maybe sat or next tues. we don't work on sunday and monday. if any case just come in straight to A & E. hopefully the antibiotics would help.
Me: Please call us no matter what is the results.
The nurses agreed.
Not quite convinced, I got their number.
We left the room and headed to pharmacy.
Please pray for Jere's white blood cell count to return to normal.
Wednesday, October 22, 2008
I want to say something....
Jere said the above as we were praying the closing prayer after our therapy program.
Every Wednesday, I take Jere to Clouds of Praise to have some exercise, in other words, therapy. We usually start and end the session with a prayer and a song of praise.
This time, after the session when we were saying the closing prayer and everyone said their bit, Jere went....
"I WANNA SAY SOMETHING...."
Marcus korkor who was beside him heard him and said it out so his mum Cassey went, "Yes, Jere you wanna say something?"
Jere nodded and went, "JESUS, HELP ME TO STAND. HELP ME TO WALK. BLESS THE CHILDREN HERE AND MUMMY. AMEN"
My eyes welled up and rolled down uncontrollably. I always get emotional when Jere speaks like that.
Lord, you hear the cry of the child Lord. Jere has asked, Lord. Let Jere receive, Lord. RESTORE JERE LORD. HEAR THE MOTHER'S CRY NOW LORD. Thank you Lord. AMEN!
Every Wednesday, I take Jere to Clouds of Praise to have some exercise, in other words, therapy. We usually start and end the session with a prayer and a song of praise.
This time, after the session when we were saying the closing prayer and everyone said their bit, Jere went....
"I WANNA SAY SOMETHING...."
Marcus korkor who was beside him heard him and said it out so his mum Cassey went, "Yes, Jere you wanna say something?"
Jere nodded and went, "JESUS, HELP ME TO STAND. HELP ME TO WALK. BLESS THE CHILDREN HERE AND MUMMY. AMEN"
My eyes welled up and rolled down uncontrollably. I always get emotional when Jere speaks like that.
Lord, you hear the cry of the child Lord. Jere has asked, Lord. Let Jere receive, Lord. RESTORE JERE LORD. HEAR THE MOTHER'S CRY NOW LORD. Thank you Lord. AMEN!
Urologist appontment
23rd Oct 930 am we will be scheduled to see the urologist. Pray for us people that
the Lord will bless Dr Y and let her speak blessings. AMEN.
I have asked Tim to take leave to go with me as frankly, talking about abuse, I think she does that to me no end just for the fact that I refuse to catheter Jere. It's strange how there are signs in KKH saying not to abuse their staff, why is there no signs to say not to abuse the patients? :P
Being an educated mum, I get scolded no end when I enter the doctor's office. What about those helpless and uneducated mums? I wonder.
the Lord will bless Dr Y and let her speak blessings. AMEN.
I have asked Tim to take leave to go with me as frankly, talking about abuse, I think she does that to me no end just for the fact that I refuse to catheter Jere. It's strange how there are signs in KKH saying not to abuse their staff, why is there no signs to say not to abuse the patients? :P
Being an educated mum, I get scolded no end when I enter the doctor's office. What about those helpless and uneducated mums? I wonder.
Tuesday, October 21, 2008
Our 3rd visit(review) to NSC
Before I start, praise the Lord and thank you Lord He went before us.
It was the 21st Oct, time for our review at the National Skin Centre (NSC). As I approached the place, I was a little apprehensive. I said a prayer not under my breath but almost aloud as I entered the entrance of the place..... LORD, LET EVERY WORD THAT COMES FROM THE DOCTORS BE A BLESSING NOT A CURSE. LORD, BLESS THE DOCTORS IN THE ASSESMENT REVIEW TODAY. GUIDE THEIR HEADS, HANDS, MINDS, EVERYTHING LORD. LORD, I KNOW YOU ARE IN CONTROL. THANK YOU LORD. LORD, JUST LET THEM SPEAK BLESSINGS. AMEN!
looking at Jere as I pushed him in his stroller, I said "Amen Jere?" Jere answered, "AMEN!"
We went past the entrance, past the recept and to the lift to the second floor to the paeds clinic.
There seemed to be not much people that afternoon. We registered and I couldn't help asking.... which doctor is it and heaved a huge sigh of relief when it wasnt the same dr as the last. We sitted ourselves right outside of room 6 and I read the name of the dr. okie. we seemed quite safe today. It's an Assoc Consultant Dr Tan Kian Teo, whatever it is, thank you Lord. Within 5 minutes, we were called. I was shocked at being so fast as the last time i spent the whole afternoon from 1 to almost 5 at the NSC. I knocked the door and tried to go in the room with my big diaper bag, trying to hold the door open and trying to push the stroller in. Almost immediately, the doctors came to the door and tried to help me including the one sitting behind the computer which is usually the main consulting doctor. Dr Tan introduced himself and the other two doctors as we entered the room and I carried Jere out of the stroller.
Then Dr Tan started off asking, "How is Jeremy today?"
I stuttered as I answered "still quite bad." not sure how's these drs gonna be this time. I got quite a phobia from the last visit, really. The first visit when we saw the emeritus, it was good though the meds did not quite work but sometimes such stuff can't be helped and I can understand that. The second visit, the dr did not quite believe or even listened to the feedback of how jere reacted to the meds and she did not even assessed Jere. She did not even come near Jere as if eczema was some contagious disease. This time, I was quite prepared whatever was gonna happen but God sure came before me and blessed the doctors. They spoke very gently and kindly and Dr Tan asked me to put Jere on the bed and they all came forward to see Jere's condition. I took out Jere's pants to show how bad the skin on his legs was, showed them the tummy, the hands and the neck. Then Dr Tan even asked me to turn Jere around to see his back. Now, to me a layman, that's what I call a doctor. That's what I feel is assessment and then treatment. Then I told the doctors of what meds Jere was given previously and how he had reacted. Dr Tan then asked if it is affecting Jere's sleep. Gosh, if I haven't told some of you, Jere's itch is so bad at night that there was this one night at 3am, I found him without his pants and diapers. From then on, i always wore button down romper over his pj pants and diapers. He must have itched so bad that he just tore off everything and flung it off as we found his pants and diapers at the other end of the room. Dr Tan then explained that he will prescribe a little stronger medicine for the flare and some antibiotics for the broken skin and some antihistamine when jere cannot sleep at night this time alongside with some moisturiser. Dr Tan even went to the extent of asking what moisturisers have I tried. After everything, the doctors kindly saw me out, helping me with the door. The whole experience was completely different from the last I had. Thank You Lord.
As I stepped out and sat waiting for my turn to pay, I saw just next to the doctors room was the medical social worker room and the name read Joanne Tan. It seemed some few days ago, some MSW of that name called to ask if I would like to joins the Atopic Dermatitis support group. I then asked the staff if I could just meet with the MSW so as to put a face to the name. I met Joanne and she was one kind young lady. Jere seemed to like her too as she played and chatted with him. We left the clinic with an appointment in 3 weeks time and headed to the pharmacy to get our meds.
Praise God and thank you Lord for going before us and guiding the drs. Lord, I know jere is in your hands and the ultimate healer is you God and you will heal Jere. Thank you Lord. AMEN!
It was the 21st Oct, time for our review at the National Skin Centre (NSC). As I approached the place, I was a little apprehensive. I said a prayer not under my breath but almost aloud as I entered the entrance of the place..... LORD, LET EVERY WORD THAT COMES FROM THE DOCTORS BE A BLESSING NOT A CURSE. LORD, BLESS THE DOCTORS IN THE ASSESMENT REVIEW TODAY. GUIDE THEIR HEADS, HANDS, MINDS, EVERYTHING LORD. LORD, I KNOW YOU ARE IN CONTROL. THANK YOU LORD. LORD, JUST LET THEM SPEAK BLESSINGS. AMEN!
looking at Jere as I pushed him in his stroller, I said "Amen Jere?" Jere answered, "AMEN!"
We went past the entrance, past the recept and to the lift to the second floor to the paeds clinic.
There seemed to be not much people that afternoon. We registered and I couldn't help asking.... which doctor is it and heaved a huge sigh of relief when it wasnt the same dr as the last. We sitted ourselves right outside of room 6 and I read the name of the dr. okie. we seemed quite safe today. It's an Assoc Consultant Dr Tan Kian Teo, whatever it is, thank you Lord. Within 5 minutes, we were called. I was shocked at being so fast as the last time i spent the whole afternoon from 1 to almost 5 at the NSC. I knocked the door and tried to go in the room with my big diaper bag, trying to hold the door open and trying to push the stroller in. Almost immediately, the doctors came to the door and tried to help me including the one sitting behind the computer which is usually the main consulting doctor. Dr Tan introduced himself and the other two doctors as we entered the room and I carried Jere out of the stroller.
Then Dr Tan started off asking, "How is Jeremy today?"
I stuttered as I answered "still quite bad." not sure how's these drs gonna be this time. I got quite a phobia from the last visit, really. The first visit when we saw the emeritus, it was good though the meds did not quite work but sometimes such stuff can't be helped and I can understand that. The second visit, the dr did not quite believe or even listened to the feedback of how jere reacted to the meds and she did not even assessed Jere. She did not even come near Jere as if eczema was some contagious disease. This time, I was quite prepared whatever was gonna happen but God sure came before me and blessed the doctors. They spoke very gently and kindly and Dr Tan asked me to put Jere on the bed and they all came forward to see Jere's condition. I took out Jere's pants to show how bad the skin on his legs was, showed them the tummy, the hands and the neck. Then Dr Tan even asked me to turn Jere around to see his back. Now, to me a layman, that's what I call a doctor. That's what I feel is assessment and then treatment. Then I told the doctors of what meds Jere was given previously and how he had reacted. Dr Tan then asked if it is affecting Jere's sleep. Gosh, if I haven't told some of you, Jere's itch is so bad at night that there was this one night at 3am, I found him without his pants and diapers. From then on, i always wore button down romper over his pj pants and diapers. He must have itched so bad that he just tore off everything and flung it off as we found his pants and diapers at the other end of the room. Dr Tan then explained that he will prescribe a little stronger medicine for the flare and some antibiotics for the broken skin and some antihistamine when jere cannot sleep at night this time alongside with some moisturiser. Dr Tan even went to the extent of asking what moisturisers have I tried. After everything, the doctors kindly saw me out, helping me with the door. The whole experience was completely different from the last I had. Thank You Lord.
As I stepped out and sat waiting for my turn to pay, I saw just next to the doctors room was the medical social worker room and the name read Joanne Tan. It seemed some few days ago, some MSW of that name called to ask if I would like to joins the Atopic Dermatitis support group. I then asked the staff if I could just meet with the MSW so as to put a face to the name. I met Joanne and she was one kind young lady. Jere seemed to like her too as she played and chatted with him. We left the clinic with an appointment in 3 weeks time and headed to the pharmacy to get our meds.
Praise God and thank you Lord for going before us and guiding the drs. Lord, I know jere is in your hands and the ultimate healer is you God and you will heal Jere. Thank you Lord. AMEN!
Monday, October 20, 2008
Nice and quiet....
I was putting Jere to nap in the afternoon in the bedroom when he said... NICE AND QUIET....
I was like what jere? what did you say?
He smiled and said... nice and quiet.
Hee... coming from a 2 yr 3 month, I think that is quite amazing ;)
He's certainly my language genius!
I was like what jere? what did you say?
He smiled and said... nice and quiet.
Hee... coming from a 2 yr 3 month, I think that is quite amazing ;)
He's certainly my language genius!
Our appointment with the National Skin Centre
if u have been asking where have we been,
nowhere actually....
but mummy me, finally got off work and is busier than ever before!
okie update on my little angel.
We went back for a review at the national skin centre on the 27th August, 2008, this time at the paeds clinic. When we went into the room, there was a young dr, I presume is the houseman, and a associate prof i think by the surname G. Assoc. Prof G was at her computer while the young lady dr looked at Jere.
Then, the Assoc. Prof G asked, "Is his eczema extensive?"
Me: (pulling up Jere's pants and socks, trying to show how bad it is) it is quite bad, you see Dr....
Assoc. Prof G: I am asking you is it extensive? Just answer me yes or no. (not even looking at Jere)
I was like.... errrr...
Well, shouldn't the dr try to see and assess it? She did not even look our way.
Me: Dr, the last time we came, he was prescribed some aqueaous cream and it seemed to make his skin flare so i stopped it and now i am using some organic eczema oil and it's gotten better. That time it flared so bad that he looked like he was burnt.
Assoc Prof G: It's not the aqueaous cream. It's probably something else you used. You have to listen to us and use what we prescribe you if you wanna come here. Do you suspect any allergy?
Me: yes. cow's milk.
Jere saw some pooh beah mega blocks and started to ask for it but i had to kinda answer the dr's questions that i brushed him aside till jere got irritated and i think the tone of the dr kinda got on him too. It's strange how children sense the vibes about them. Jere is usually very friendly and amicable but once he sense the wrong signals.... that's it... he usually wanna get out of the room asap.
Assoc Prof G: Is he always so irritable?
Me: No Dr. He just wants the mega blocks.
Assoc Prof G: Then give it to him. he seems so irritable.
Well, you guys who have met Jere would know what kind of temperament jere has. he's hardly ever irritable. In fact he's so friendly that almost everyone loves him.
Assoc Prof G: okie i will send you for a prick test, a saliva test and photo session. You can go now.
I was like huh? you haven't even assessed the child. Is this how it should go?
I was escorted out of the room by the young dr and there i was seated outside a nurses' room waiting for Jere to be pricked.
Jere was pricked and tested for 11 elements, namely the negative and positive control, soy, cow milk, egg white, egg yolk, wheat, peanut, derP, derF and Blom T, the last 3 being some kinda dust mites. Then we were sent to another Assoc prof room for the analysis of the prick test. Assoc prof G came into the room through the connecting door of the consultation room, kinda talking to herself, definitely not talking to me... well maybe talking to the houseman or the other prof, i don't know but i heard her saying something like she's gonna prescribe this med, that med and that med and all the walls are covered already and she left the room. After she left, the other prof H said okie what med is this? how come it doesn't show in the system? and what's this? and what's that, mumbling to himself and sent me along....
we were then sent to a room to do what saliva test... i was then told this is a voluntary thing for them to experiment. I was then asked to make Jere spit a whole little tea cup of saliva... these guys gotta be kidding.. that prof g must have thought we were a good mother and child to be bullied coz she definitely did not tell me this was a voluntary test and had nothing to do with the treatment process... I then told the ladies in the room that it is almost impossible to ask my 2yr old to spit so much saliva. We can sit there till the cows come home, I don't think I can achieve that with my little one. They kindly sent me along and said no prob at all. At least they had the decency to explain to me. Then I was sent to this room to take what photograph... i was asked to strip Jere to the diapers and let the photographer take all the pictures he liked only again to find out that the photos are taken for the centre to make whatever publication....gosh!
Then in the end when i went down to the pharmacy to get my meds, it was only ONE PHYSIOGEL! wow! all walls covered indeed.
I really felt that we were more used than treated... wonder what that assoc prof G is thinking!
Really.... shouldn't drs be more compassionate? Shouldn't treatment of patients be more hollistic?
Tomorrow, 21st Oct, 2008 we have a review appointment at NSC again and I'll definitely get shot again, coz the physiogel did not do no good. Jere's skin still look as bad....
We use the natural eczema oil blend to control but once we stop, it will flare and the what physiogel is sure not helping at all.
Will update again!
nowhere actually....
but mummy me, finally got off work and is busier than ever before!
okie update on my little angel.
We went back for a review at the national skin centre on the 27th August, 2008, this time at the paeds clinic. When we went into the room, there was a young dr, I presume is the houseman, and a associate prof i think by the surname G. Assoc. Prof G was at her computer while the young lady dr looked at Jere.
Then, the Assoc. Prof G asked, "Is his eczema extensive?"
Me: (pulling up Jere's pants and socks, trying to show how bad it is) it is quite bad, you see Dr....
Assoc. Prof G: I am asking you is it extensive? Just answer me yes or no. (not even looking at Jere)
I was like.... errrr...
Well, shouldn't the dr try to see and assess it? She did not even look our way.
Me: Dr, the last time we came, he was prescribed some aqueaous cream and it seemed to make his skin flare so i stopped it and now i am using some organic eczema oil and it's gotten better. That time it flared so bad that he looked like he was burnt.
Assoc Prof G: It's not the aqueaous cream. It's probably something else you used. You have to listen to us and use what we prescribe you if you wanna come here. Do you suspect any allergy?
Me: yes. cow's milk.
Jere saw some pooh beah mega blocks and started to ask for it but i had to kinda answer the dr's questions that i brushed him aside till jere got irritated and i think the tone of the dr kinda got on him too. It's strange how children sense the vibes about them. Jere is usually very friendly and amicable but once he sense the wrong signals.... that's it... he usually wanna get out of the room asap.
Assoc Prof G: Is he always so irritable?
Me: No Dr. He just wants the mega blocks.
Assoc Prof G: Then give it to him. he seems so irritable.
Well, you guys who have met Jere would know what kind of temperament jere has. he's hardly ever irritable. In fact he's so friendly that almost everyone loves him.
Assoc Prof G: okie i will send you for a prick test, a saliva test and photo session. You can go now.
I was like huh? you haven't even assessed the child. Is this how it should go?
I was escorted out of the room by the young dr and there i was seated outside a nurses' room waiting for Jere to be pricked.
Jere was pricked and tested for 11 elements, namely the negative and positive control, soy, cow milk, egg white, egg yolk, wheat, peanut, derP, derF and Blom T, the last 3 being some kinda dust mites. Then we were sent to another Assoc prof room for the analysis of the prick test. Assoc prof G came into the room through the connecting door of the consultation room, kinda talking to herself, definitely not talking to me... well maybe talking to the houseman or the other prof, i don't know but i heard her saying something like she's gonna prescribe this med, that med and that med and all the walls are covered already and she left the room. After she left, the other prof H said okie what med is this? how come it doesn't show in the system? and what's this? and what's that, mumbling to himself and sent me along....
we were then sent to a room to do what saliva test... i was then told this is a voluntary thing for them to experiment. I was then asked to make Jere spit a whole little tea cup of saliva... these guys gotta be kidding.. that prof g must have thought we were a good mother and child to be bullied coz she definitely did not tell me this was a voluntary test and had nothing to do with the treatment process... I then told the ladies in the room that it is almost impossible to ask my 2yr old to spit so much saliva. We can sit there till the cows come home, I don't think I can achieve that with my little one. They kindly sent me along and said no prob at all. At least they had the decency to explain to me. Then I was sent to this room to take what photograph... i was asked to strip Jere to the diapers and let the photographer take all the pictures he liked only again to find out that the photos are taken for the centre to make whatever publication....gosh!
Then in the end when i went down to the pharmacy to get my meds, it was only ONE PHYSIOGEL! wow! all walls covered indeed.
I really felt that we were more used than treated... wonder what that assoc prof G is thinking!
Really.... shouldn't drs be more compassionate? Shouldn't treatment of patients be more hollistic?
Tomorrow, 21st Oct, 2008 we have a review appointment at NSC again and I'll definitely get shot again, coz the physiogel did not do no good. Jere's skin still look as bad....
We use the natural eczema oil blend to control but once we stop, it will flare and the what physiogel is sure not helping at all.
Will update again!
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